The Cancer Patient
Posted over a year ago
I have been on predisone for gvhd following a bone marrow transplantion . I also take about 20 other medicines to control my post lukemia/bone marrow transplant that I have happended to survive since 2/6/06.
Thanks for any experience
Heatherkad - I HAVE A-PLASTIC ANEMIA, AND THROMBOCYTOPENIA, AND I AM IN NEED OF A BONE MARROW TRANSPLANT. I AM GOING ON TWENTY TWO YEARS OLD, AND HAVE KNOWN ABOUT THIS SINCE I WAS ALMOST 14. YES I KNOW U R PROPABLY THINKING WHY HAVENT I ALREADY GOT THE TRANSPLANT. BEFORE I TURNED 18, I WENT TO ST. JUDES, AND AM NOW GOING TO VANDERBILT, IN NASHVILLE. MY DOCTORS PUT ME ON XANAX 2MG., 4X A DAY , AND KADIAN 100MG. 4X A day, which is morphine. WHENEVER I STARTED OUT AN LESS THAN THAT, MYDOCTORS KNEW I WAS GETTING HOOKED ON IT AND WAS ABUSING IT, THEY TALKED TO ME ABOUT IT, BUT ALTHOUGH THAY KEPT RAISING MY DOSAGE EVERY MONTH. I WAS REALLY DEPRESSED AT THAT TIME AND REALLY DID NOT CARE ABOUT ANYTHING, I WAS DENYING MY PROBLEMS THEY WERE TOO HARD FOR ME TO COMPROMISE AT THAT AGE. AFTER A FEW YEARS , Another DOCTOR CAME INTO THE PRACTICE, AND I GOT BUMPED OFF TO HIM, HE PRETTY MUCH BLAMED ME FOR ALL OF THE DRUG TAKING, ALTHOUGH THE DOCTORS THERE GOT ME ON THEM, AND KNEW, SOMETHING WAS WRONG AN KEPT, GIVING THEM TO ME. HE CUT ME OFF OF THE MEDICATIONS COLD TURKEY. AND DID NOT EVEN OFFER ME ANY KIND OF HELP. I HAD TO GO INTO THE EMERGENCY ROOM ALOT OVER WITHDRAWLS, AND TO THIS DAY, I AM CLEAN AND HE STILL TREATS ME LIKE MY LIFE DOES NOT EVEN MATTER BECAUSE OF THAT. BUT I REALLY DO NOT KNOW OF ANYY OTHER HEMATOLOGY-ONCOLOGY DOCTORS AROUND THE ELIZABETHTO, OR JOHNSON CITY AREA!!!!!!! HEATHER -TENNESSEE
Umans - thank you. i am in the process of weaning off of meds but I have graft vs hoast of the gi and i cant afford for that to get worse. i hope you feel ok and good luck if you get your transplant. It sucks...... If you want one familys story.... www.thestatus.com patient: Umans Password:street-singing thanks and good luck, mike