PredniSONE Autoimmune Hemolytic Anemia, Upper Body Strength, Stomach Virus, Huge Belly, Body Mind and Spirit
I think I have been put on the mother of all doses of Pred. I was diagnosed with Autoimmune Hemolytic Anemia, and as a result of my low Hemo count (3.9), I was put on 180 mg - yes, 180 mg of Pred a DAY. I have since tapered down to 80 mg, but the tapering cannot go fast enough for me. I have horrific moonface, I cannot get out of bed without assistance because I have developed this HUGE belly that droops like a skirt (and I am eating all low-fat, low carb stuff), I cannot get out of chairs without assistance because all of my upper body strength has disappeared. I have developed headaches now, hot and cold flushes, and was recently hit with a stomach virus that made life hellish for me, since even getting to the bathroom is a job. ... more »
I think I have been put on the mother of all doses of Pred. I was diagnosed with Autoimmune Hemolytic Anemia, and as a result of my low Hemo count (3.9), I was put on 180 mg - yes, 180 mg of Pred a DAY. I have since tapered down to 80 mg, but the tapering cannot go fast enough for me. I have horrific moonface, I cannot get out of bed without assistance because I have developed this HUGE belly that droops like a skirt (and I am eating all low-fat, low carb stuff), I cannot get out of chairs without assistance because all of my upper body strength has disappeared. I have developed headaches now, hot and cold flushes, and was recently hit with a stomach virus that made life hellish for me, since even getting to the bathroom is a job.
I am TIRED of doctors saying, "This is a good drug..." - I honestly wonder if any of them have been on it. I would love to see that. My body, mind, and spirit are ruined now as far as I am concerned. :(
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