Mirena Post Partem, Respiratory Issues, 4 Women, Breastfeeding Mothers, X Ray
Posted over a year ago
PERFORATED MY UTERUS --- The placement of the Mirena was extremely painful. I could barely drive afterwards. I was sure that something was wrong, but the doctor assured me that everything was fine. I breastfed my son for a year (I had it placed 6 weeks ... more »
PERFORATED MY UTERUS --- The placement of the Mirena was extremely painful. I could barely drive afterwards. I was sure that something was wrong, but the doctor assured me that everything was fine. I breastfed my son for a year (I had it placed 6 weeks post-partem) which is why I had it placed in the first place. It was considered safe for breastfeeding mothers (please research side-effects of the active hormone it releases on infants. We now know why our 13 month old has had respiratory issues since he was 5 months old). Over the year, I had radial stabbing pains up my back and down my legs. It hurt during sex. At my year check up, I asked the doctor to remove it, but he could not find the strings to remove it. After an x-ray confirmed that it was still in my abdomen, he scheduled a hystoscope to find it and remove it (he assumed that it was still in my uterus). During the procedure, he could not find the Mirena in my uterus and had to perform emergency laparoscopic surgery to remove it from MY ABDOMEN. It had PERFORATED MY UTERUS. My husband and I now know of 4 women that this has happened to just by telling people our story. WE LIVE IN A SMALL TOWN!!!! THE NEGATIVE SIDE EFFECTS ARE UNDER REPORTED!!! PLEASE INFORM YOURSELF BEFORE GETTING THIS DEVICE.
Hauserka - I had a similar problem. I got the mirena put in 2-3 months after i had my daughter about April of 08 and i went in for a check up a month later and they could not find the strings so they did a ultra sound and a vag ultrasound and did not see it anywhere so they said it expelled itself. So i got a new one put in about a month later. I had to have a ct scan about a month and half ago because of right side pain and they found the freaking IUD in the left side of my pelvis and a cyst on my right ovary!!! So i have had two Mirena iud in for almost a year! The Dr use a laparoscope to remove the IUD and clean up the cyst( It had already burst). But i did kept the other iud in place because it was still in the right place but i have extreme pain in both ovaries every other week and very small spotting. I'm getting very fed up with this iud I thought i would give a little time but it really hurts. I really like the fact that i don't have to worry about birth controll for 5 years but i think I'm going to have to get over that and get on the pill or nuva ring. well that's my story! thanks
Hippygirl - I just found out yesterday that's what happened to me. I am wondering if that is what's causing the extreme bloating and pain. I look 7 months pregnant and have been asked if I'm pregnant.
Thank you for sharing your story. I feel less alone, less frightened. I will get results and information from my ob/gyn on tuesday.
Hippygirl - I just found yesterday that my Mirena is not in place. They will do surgery to remove the Mirena once they find it.
Thanks for sharing your story. I feel less alone and less frightened. Get all results and information on tuesday. In the meantime I am searching on class action lawsuits.
Dosm - I have also been searching for lawsuits- I am going in in 2 weeks to have surgery to have this removed!
Renee2409 - Omg!!...i too am a victim of the IUD purforating my uterus, i just found out yesterday, i went in becuz i've been bleeding very heavy off and on since i got the mirena since a mnth after i got the mirena july09, the doctor opened my cervix to see if she could see how much blood i was losing, and didnt see the strings of the mirena, she thought it probably fell out and i didnt notice, but she sent me for a xray to make sure and they found it in the upper portion of my stomach, i was sent for a ct scan, and they said it was all tied up in my upper intestines, so they would need to go in and un tangle it to remove it, they're gonna go in and place cameras in my stomach and cut small holes to pull it out..i get this today and im scared..but now i kno that im not the only one thats been through this, i wonder tho is there anything legal that can be done to prevent this from happening to more ppl.,
Mindee - THIS JUST MADE ME CRY WHEN I READ YOUR STORY. THE SAME THING HAPPENED TO ME. I GOT IT PLACED AFTER MY DAUGHTER WAS BORN. I REALLY WANTED MY TUBES TIED AFTER MY C-SECTION BUT MY MID WIFE SAID I WAS TOO YOUNG. SO I WENT IN TO GET IT PUT IN RIGHT AFTER GETTING IT PLACED I WAS IN SO MUCH PAIN LIKE YOU I HAD TO DRIVE MYSELF HOME AND ALSO ASKED IF THE PAIN I WAS FEELING WAS NORMAL? ALL SHE SAID WAS YES. LONG STORY SHORT THEY TOOK THEM NINE MONTHS TO FIND THAT THE IUD HAD GONE ALL THE THROUGH MY UTERUS AND WAS SITTING ON MY LEFT HIP BONE. I WAS BLEEDING EVERY TWO WEEKS FOR NINE MONTHS. COME TO FIND OUT I WAS THE SECOND PERSON SHE HAD PUT THE MIRENA IN. I HAVE HAD MANY PROBLEMS AFTER HAVING IT REMOVED.
Kateec - I am so sorry. It is very upsetting to know that the same thing is happening to other people. I had noticed that they have stop doing commercials on the TV and in the magazines. But then recently, I've started noticing them again. My body, now, more than a year of having it surgically removed, feels like I am somewhat back to normal. I wish that there was a way that we could unite (all of us) and take action against this horrible form of birth control.
Kaityc - KT: I had the mirena put in 6 weeks after my daughter was born. In the middle of the ngiht I woke up in so much pain that I could barley move. I was rushed the ER and they told me the mirena had gone though my uterus. I had to get it surgically removed through my belly bottom. This was 2 years agao and I still experience pains in my lower stomach. Sometimes it spreads down to my legs. It almost feels like the pain of a UTI or bladder infection but worse. I have been trying to look these symtoms up online but am having o luck.
Candie - I have the Mirena. About 2 yrs after it was inserted they didn't see the string & sent me to have an ultrasound and they said your fine its still there. Now 5 yrs later I went to get it removed & a new one inserted during my reg. pap. They couldn't find the string again. So I was refereed to a specialists. He tries pulling it out with different tools about 3 or 4 times. It didn't come out. I screamed so loud it effen hurt sooo bad.It felt like he was pulling out my uterus. He finally stopped I was rushed to an urgent ultra sound. No one has told me the results just that I need surgery. I go to preop tomorrow (wed.) I expect to know the results & have surgery Monday.
Lyne27 - LYNE- I have had the same experience with the Mirena.Mine was inserted 5 weeks after my c section,way too early.I was also nursing my baby and had nursed the baby in the office after the iud was placed.My husband was with me at the time and I have had 2 Mirenas placed before this one and I love them,until now.After calling Mirena and getting some of my questions answered ,the doctor was not supposed to place the iud so early after a c section and also not recommended for nursing mothers until after 12 weeks.Please do your research before getting the Mirena or any iud before hand.The doctors are supposed to be educated on these things and should have informed me.My iud went all the way through my uterus and was poking me in my bowel.I told them right away that something was wrong and they said I would be fine.I called them for 3 days at the doctors office and told them NO something is VERY wrong.They said they would get me in in a couple of days to do an ultasound,I said NO I need to be seen NOW,I felt like I was about to poop out and iud.They finally listened ,got me in,and sure enough it was right were I told them it was.They rushed me in for emergency surgery to remove it and now 5 months later I am still experiencing pain.I see a specialist in 2 weeks but think I may be going into the hospital instead.This has been a nightmare for me and my family.Something like this can affect an entire family,my 2 older children watched me go this this pain and a second surgery since I had just had an emergency c section 5 weeks earlier,it was very scary for them,and me of course.This experience,I am afraid is not over yet.I just hope I can walk away from this with a clean bill of health.
Meland - After having my IUD for nearly 3 years, it was found outside my uterus after 3 tires to get it out. It has been gone almost 2 years and I can't get rid of the side effects. I found one article that said you get a 10x dose of hormones when it is outside the womb. Almost 2 years and I am still not making my own progesterone, so I developed osteoporisis at 35. FSH (follicle stimulating hormone) is almost at menopausal levels so I'm not ovulating. Numb leg, pain all over the body, failed EKG and erratic heartbeat, blood test and brain MRI's showing inflammation, rosacea, eye and sinus issues, no energy, not as sharp mentally, teeth and jaw pain, pressure on my head constantly. . .all this still going on 2 years after surgical removal. I feel like Mirena has ruined my body. I was healthy before I got it.
Lyne27 - Meland,crazy that you have had all these symptoms,I too have had the same effects.I was unaware that the levels of hormone are higher outside the uterus.Where did you find this information?It makes sense that there could be more side effects.Either way the surgery itself to remove it has also caused complications for me.Sorry you too have had to go through this.
Melanderso - Lyne, Sorry for the delay. I've been out of town. I got that info from a case study.
[link removed]
If you search "plasma" it says the girl had a 10 x dose.
I hope we can find a solution. How long ago did you have it removeda?
Melanderso - Ok, it won't let me do the link. Try seaching "The Lost Mirena." There's another case study where they discussed Mirena causing osteoporosis. "Osteoporosis in a young woman after 6 years of levonorgestrel administration from intrauterine devices."
Lyne27 - Sorry took so long to get back.It was only 5 1/2 months ago.I am still experiencing problems.The IUD nicked my bowel and I am still feeling pain there as well as in the uterus ,the area were the IUD went through.I am hoping it is all just scar tissue healing.I am just about done nursing so that may help eliminate some of the pain.Thanks for the info,I will look it up.
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