Has anyone experience with the autoimmune blistering disease of pemphigus? Course of treatment? Longevity? Encouragement?
Ruthie52 - My mother has pemphigus and last year took an experimental treatment called rituxin and it almost killed her. She has had the horrible disease for alomost 7 years now. After all this horrible stuff that happened to her she is alomst sore free but she lost her lower lip from all the horrible stuff that happened. I will pray for you as I do my mother.
Astrosue - A friend of mine has developed this and is taking methotrexate. Seems to be taking care of the problem but it took a long time to sort it out and quite a bit of cortisone to quell the itching.