Topamax and lupus

I'm on my first month of Topamax and going to work for the first time in two weeks! Someone mentioned feeling like a box of rocks on this stuff, its true, but in my case the dosage increase might have been too abrupt. I take it for epilepsy, 100 mg. I was completely non-functional during the transition! Not only was I so tired I couldn't move, so sick I couldn't eat (I've lost a lot of weight), but I was constantly dizzy. I would often get icy to touch and pass out, mores after eating.

Cognitively, I was severely depressed, and had a constant "noise" sensation in my head which I started yelling at during odd moments. I believe I even hallucinated at one point that the room was expanding. Mostly, people thought I was stoned because I would just stare at the wall and have difficulty talking to them without slurring my words.

It's been a truly terrifying couple weeks, however I've settled pretty quickly out of the major side effects. I think thats pretty much what happens for everyone. I'm happy to have my brain back.

Topamax is TERRIBLE... works great for migranes, but losing SOO much hair. I have been off of it for 4 1/2 months ... hair loss is slowing, but still going. My gorgeous hair turned to brittle straw... Also T affected my liver and nervouse system. It is AWFUL... not worth it.