Mirena and lupus

I had the Mirena inserted 8 months ago and have just made an appointment to have it removed next week. My situation is made worse by my active Lupus which may be cause for some of the problems, however I'm still having it removed. My husband has believed it to be the source of my problems from day one.

I don't know what is wrong with you people but its like you can't handle anything. I had the mirena put in November last year and yeah ok i had cramping for the first month or so and yeah i had spotting. But unlike some of you fools i knew what the side effects were i read what came in the package which means i knew what to expect before i got it put in. And yeah there are loads of possible side effects but if you read everything and know what could happen you shouldn't complain if something does happen. Not everyone who has the mirena has these things and for people who are considering it i would recommend trying it and after 3 months if it doesn't feel good then get it removed. That especially goes to people that have just had a baby... i mean really in the first 3 months after having a baby who is really seriously interested in sex right away. The reason i am here was to see if there was more information about them now because UNFORTUNATELY i had to have mine removed for an operation. I had a cyst on my fallopian tube which was not mirena related. In fact almost all women get them when they are menstruating but they go away. Unfortunately with me they don't go away and this is the 2nd cyst to be removed in 3 years. I am planning on getting a second mirena inserted next week. Because frankly i find it ideal. And yeah i may have had mood swings on occasion while i had it but come on think about it what woman doesn't have mood swings. So sure you can blame everything on the Mirena but for the most part besides then for the people where the mirena got stuck or moved during the time you had it... its all in your head. And like i said before i would recommend the mirena and if after 3 or 4 months it doesn't suit you then go for something else... but don't dismiss it because some people have too much time on their hands and like to spend it whining over everything on the net. Remember with the Mirena you have a 50/50 chance of having symptoms or not. Take that risk before taking the risk of going on the pill and forgetting to take it or going on depo provera and putting on 20 pounds.

I had my Mirena removed in May of 2008. I, too, was thrilled to find a seemingly perfect form of birth control after having 4 children. It has turned out to be a nightmare. I had horrible mood swings, intense anger, cramps, no libido, body aches and the worst part for me, hair loss. I have lost at least 50% of the hair on the top of my head. I went through countless doctor appointments - general physician, o.b., dermatologist. Back and forth with tests for thyroid, diabetes, lupus (biopsy on my scalp and blood tests) all of which have come up negative. I am still seeing the dermo and am on a steroid scalp treatment. The hair loss seems to have stopped but I have yet to see new growth. I am hopeful one day I will find new growth on my scalp. Everyone hang in there - it has to get better, right???

Has anyone experienced hives with Mirena? I had it put in about 7 weeks ago and now I seem to have broken out in hives on my arm. I have not experienced any other significant side effects so far.

Same story different person! I had my Mirena placed February 08. Three months later, I could not lose weight no matter how hard I tried. I have major hair loss, anxiety,sore muscles and joints, and extreme fatigue. Oh yeah, I forgot the memory loss and brain fog. I have been to my Drs. and have had thyroid, lupus, and other blood tests. All negative, therefore I am starting to point the finger at the Mirena! It's coming out Monday! Just can't live like this anymore!

I had mine inserted about two weeks ago. It was slightly uncomfortable. Not a big deal at all. A little bleeding and cramping. Haven't had sex yet due to horrible gas that I have had for two weeks. My husband is convinced that is how it works, because your husband won't touch you....he he he...
We will see.
I have had terrible anxiety issues in my past and I haven't had a problem with mood swings or panic attacks.
I am hoping this will work. I have three children and currently my husband is taking medication for lupus that can cause huge birth defects. So sick of condoms!!!1

I am 26 years old I have a wonderful husband a little girl and a little boy. To me thats a complete family without the dog. I have had the Mirena for a little over a year. Don't get me wrong sex don't make a relationship but when I loss my sex drive a lot of things change. Like our bond was no longer there. I could balance my check book in my head while having sex. I thought that my weight gain and me not feeling attractive was the reason for the loss of my sexual desire. Lately, I have been very depress, have had several headaches and becoming more and more fatigue. Now, I also have discoid lupus and made and appointment to see if any of my side effects are coming from my lupus progressing. While looking up information on my lupus I decided to finally do some searching on the IUD. But now I want to get this thing taken out of me. If what you all are saying is true I don't want it no more. It's bad enough that I have loss my sex drive at 26 and I don't want to loose my husband because I can't preform in bed. To be blunt about the situation what I won't or can't do another women will and our husbands got needs too. So thank all of you all for saving my marriage before infidelity start to become an issue. Sex have never been an issue until about 8 months ago. He have been patient with me and I force myself to have sex and just fake it but I want my natural desire back. I had even look up sex pills thinking that something was wrong with me. Thank You again.

I have experienced most of the side effects that others have listed here. Mental fog, dizziness, blurred vision, horrible fatigue, cold intolerance, weight gain, joint pain, etc. These started approximately one month after insertion. I have been to my PCP multiple times and have been evaluated for things ranging from hypothyroidism to lupus. All tests have come back negative. No one has once suggested that it may be due to the Mirena. I am going to have it removed at my next visit and I would be willing to bet that many of my symptoms will be resolved.

I had minor cramping when I first got the Mirena put in. But, it was much milder than when I get period cramps. I didn't have any trouble with it (unless you count extremely light periods as a bad thing) until I did air travel (cross country airplane flights). Now, keep in mind, I travel a fair amount by car & have had zero Mirena issues from sitting in a cramped position for hours in car travel. Flying on the airplane caused really weird lower back cramping that put my out of a lot of activities. It was quite definitely core muscles cramping severely, to the point of pulling my lower back vertebrae & tailbone slightly out of alignment. After 3 weeks of pain, I finally went to a chiropractor & got realigned. This has happened with 2 flights thus far out of 4 (it doesn't seem to happen on short 1 hour or less flights). I have NO idea why this happens. I normally have no issues when flying. The mirena is the only thing that's changed. I can only assume it's the combination of the position when in a plane seat for so long & the mirena. Maybe it's poking one of my fibroids in that position?

Mirena has had zero effect on my PMS. PMS is just as bad as without any BC. My acne is just as bad as it is w/o BC. I guess I need Retin A & Midol. LOL

Things to keep in mind when reading the above: I've never had a child. I've been pregnant once & miscarried. I'm in my early 30s. I'm a light smoker. I have uterine fibroids. I rarely drink. I have lupus. Some of these things may or may not have an effect on what happened to me. So, keep that all in mind.
Also, as with all of these experiences, keep in mind it's personal experiences & we're all unique individuals. I'm keeping my Mirena because this is the only big issue I've had & I don't travel a lot.

I had my Mirena inserted in July, shortly after the birth of my second son. Having Antiphospholipid Syndrome, Type 1 Diabetes, and Lupus, the doctors wanted me off estrogen birth control pills. Not sure if we want a third child, thought Mirena was the way to go. I am 33 and back in the college days I was on the Depo shot and had horrible acne, mood swings, breast tenderness, and nightmares. A few months ago I started noticing the same effects with the Mirena. Nightmares, acne, but most annoying, no sex drive whatsoever, and extreme snappiness to my husband and children! I feel like how you get the week before your period....I feel depressed like that EVERY week....like "blah", can't seem to snap out of feeling blue. Not sure what to do. I wonder if Copper IUD's are any better since the evil progesterone is the bad culprit? I may just try to see if the Rheumy and OB will let me go on B.C. pills for just a couple more years....by then I should know if I want one more baby and if not, then I can get sterilized. My OB did say no one has ever complained to her before about these effects. But, I know simply b/c the Depo Shot, that the things I am feeling are real and from the Mirena and not just a modd disorder.

I am very interested to hear of any connections between the Mirena and lupus or stenosis of the renal artery.
I am getting the Mirena removed and replaced with a non progesterone impregnated old fashioned type.
Todd

I have been on mirena now for 10 months. I was on the depo for 10 years prior. I loved my depo adn only went off of it after Kaiser said I could not do it any longer. I was told that mirena was a god send and a lot like my depo. I can say that the combination of depo and mirena I have not had any period at all. but that is where the happiness ends. I have experienced moths of breast pain. it hurt to touch them let alone put anything on them. after about 6 months and numerous trips to the vet it disappeared. then I got a small rash on my neck and by my arms. went to dermatology and since then I have been there, or to my primary or an allergist every week since then. the rough severley itchy skin is constant. remarkably every 29 - 32 days it fades for 2 days or so and just when I am sure it is going away wham back it comes and each time it is getting worse and worse. having never had any skin problems before I believed the doctors tha tit was folliculitus, then they said dermatitus, then they said uticaria and then hives or the last straw i was causing it that it was in my head. i just got a new allergist and while she doesn't knwo if it is my mirena she can tell me I have histamine levels that are off the chart. my husband is allergic to a lot so we already use free & clear everything and my housse is spotless but I am still being told it is soemthing I am doing to myself. I have also been reevaluating my things and I relaize I have been experiencing a lot of numbness and joint pain. so much so that my primary sent me to a rhuematlogist and he ran every test for lupus, and many other diseaeses adn even cancer. I was going crazy. Iwas beginning to think maybe I was mental. I have since been researching mirena and I am finding it so much more than what the pamphlet says. I finally got the nerve to call my ob, adn she ahs since been researching things with me and we know for sure that no matter what next week I get my mirena removed. I am just feeling so alone and depressed. I am 33 years old and instead of enjoying my new marriage I am contemplating a divorce becasue I do not want him to be stuck with soemone who might be crazy. seeking support and anyone else who feels this way.

I have mirena for 2 years and 6 months I feel depress I can not wear contact lenses since, I think my ANA is high for this reason 1135 is not lupus but the only extrange in my body is Mirena I do not drink any medicine I was healthy before it Does anybody has this side effect?

Marysabel Miami FL