Lupron and fibromyalgia

Wow. I have been reading all of your comments about Lupron and I am shocked. Here I am fighting with my insurance company to let me take a second course of Lupron. I only was given 6 months worth and FDA (according to my insurance) won't allow me anymore because of the dangers????

I have been in severe pain with accompanying problems from endo. Had a complete hyrsterectomy already years ago, but the endo came back (which I did not know it could) in various other organs that you can't operate on. My only choice was Lupron. I would be down in bed 2 or 3 times a week with the pain from endo, which irritated my bladder, my bowels, my sex life, you name it. Upon receiving the 2nd shot I felt so good I almost screamed! NO PAIN! It was the best 6 months of my life.

Now I am in total and severe pain everyday. Having fibromyalgia on top of it does not help either.

Anyway, I just thought I would voice my experience with Lupron.

Hi everyone, I am a 36 year old with severe endometriosis. I was diagnosed at 17 and was offered a hysterectomy at that time, since I would never have children (So they said, 5 miscarriages but 2 babies, later, I had them all fooled). I have had 6 surgeries throughout the years for severe pain and endo growth. Finally, I asked for a hysterectomy to avoid all of these problems. My Dr. asked me to try Lupron first for relief. I have to say, I am so glad I did!!! I have felt better on the Lupron than I have in years. In addition to this, I have been taking 5mg Aygestin as back therapy (Norethindrone) and I take Calcium replacement daily. It has been wonderful. I have felt good, LOST weight, but do have annoying hot flashes the first week after the shot, but they go away. Additionally, I have had fibromyalgia for the last five years, and my pain symptoms have gone away with the Lupron +add back therapy. I think the 5mg of Norethindrone is the key to preventing the terrible side effects that Lupron is noted to have. I would recommend the shot, only with the additional Progestin- along with a multivitamin with calcium. I am GLAD I did! A hysterectomy may still be in my future, but for now, I have options.

Hello , My name is Naisha I was giving Lupron in 2002 and I would NOT TAKE THE DRUG if I was you . I would do anything to have the Endo back then feel the way I feel from THE LUPRON it is a drug from HELL. I would of never taken Lupron if I was awear about all the side effects that the shot had and YES everyone body is different but I see to many caes that went bad . If you like to read story about what alot of the side effects our look up the website-http://www.ipetitions.com/petition/Depot-Lupron/signatures-5.html. You know what the sad part is I still had to have an Hysterectemy buz the shot was not working at all for me I would still feel all the pain without the bleeding , Only if I can go back to the day My Doctor said only thing I can do now Naisha is we can try a new Drug they have out called LUPRON to help control the Endo buz I was to young for a Hysterectemy at the time I was only 25yrs old with one kid and my INS will not appove it HE said. Here is all the side effects I'am having for that dama LUPRON , headache , hotflashes/sweats,nausea,weight gain/loss,joint disorder,nerous system,depression,skin rash,breast swell -tenderness. . So what all the side effects my Dr check me because they was thinking I had Lupus that was rule out so I now have Fibromyalgia and I am only 29yrs old , and I can go on an on . But I am scared to death because I got pregnant atfer my last shot and what will end up happening to my lil girl every year I seem to have a new side effects. Please check that one website and see if you think twices before you go on LUPRON I would take the LUPRON shot back anyday if I could.

well i havent started the shots yet but by what i am reading here i am not so sure i want to get these shots!! they found my endo a couple months ago and i have to have the shots but i really am scared!! i have much pain and problems now but it seems like the shot is going to make me worse!! i dont know what to do!! does anyone have any good sites for me to go on and do some research on these shots? someone help i dont know what to do!!! fara

fibromyalgia, chronic myofascial pain, orthostatic hypotension, muscle fibrosis, brittle teeth, peripheral neuropathy, tinnitus, microcirculation troubles, degenerated discs, arthropathy, peripheral edema, muscle stiffness, muscle contractures, joint pain

I am using daily low dose Lupron injections in preparation for an IVF surrogacy. This is my second try as the first embryo failed to thrive. The first cycle, the Lupron clouded my thinking and caused severe aches and pains. This time around, though, I am having more frightening symptoms of heart palipitations and chest pains that keep me from sleeping at night. It's hard to know when a doctor should be seen about these side effects or simply wait them out, as they seems to be common with this med. I am required to take this med, there is no other option, but I want to give a word of advice for those using Lupron for the treatment of ENDOMETRIOSIS- I HAD LESIONS CAUTERIZED WHEN I WAS 23 (6 YEARS AGO) AND I WAS TOLD THAT THEY WOULD COME BACK INDEFINITELY. THE CONDITION IS CAUSED BY AN EXCESS OF ESTROGEN. THERE IS A SIMPLE,SIDE EFFECT FREE,AND CHEAP WAY TO REMEDY THIS CONDITION. YOU CAN GO TO A HEALTH FOOD STORE AND FOR $16-25 YOU CAN BUY A NATURAL, PLANT DERIVED PROGESTERONE CREAM THAT YOU SIMPLY RUB ON YOUR SKIN. IT WORKS! I PREVIOUSLY HAD 2 MISCARRIAGES BECAUSE I WAS LOW ON THIS IMPORTANT HORMONE. A MEDICAL DOCTOR WILL NOT RECOMMEND THIS TREATMENT BECAUSE THEY ARE TRAINED IN ARTIFICIAL MEDICATIONS, NOT NATURAL. GO TO A NATURAPATHIC DOCTOR IF YOU LIKE, OR SIMPLY DO THE RESEARCH YOURSELF, AS I DID. SYMPTOMS OF LOW PROGESTERONE ARE TROUBLE SLEEPING, WEIGHT GAIN, THROID PROBLEMS,LOW LIBIDO, UNABLE TO SUSTAIN PREGNANCY. When I am not preparing for an IVF cycle, I have been using it faithfully beginning the 12th-28th days of my cycle for 6 years. You would not believe all the health problems that hormone imbalance causes. I am now in great health(sans Lupron), ideal weight, have no problems with my thyroiditis (I have not needed meds), have no trouble sleeping(normally), and have not had a single fibromyalgia flare up since (again, before Lupron) and I was able to sustain a pregnancy to have a wonderful son. AGAIN, DO NOT EXPECT YOUR DOCTOR TO INDORSE THIS, MINE DID NOT AND I HAD 2 MISCARRIAGES BEFORE FINALLY TAKING MY HEALTH INTO MY OWN HANDS. GOD IS GOOD!

This is the drug from hell! Nothing really happened after my first one-month shot, just a few mild hot flashes. My doctor had wanted to give me the three-month shot, but I insisted on the one-month to see how my body reacted. A month later I was given the three-month injection. The hot flashes increased dramatically. About a week later I started to feel like I was truly going insane. I was having serious panic attacks, I could cry over absolutely nothing, and I had this wierd disconnected feeling. Couldn't sleep, was exhausted yet had nervous energy, palpitations, feeling of unease all the time. This was pretty intense for a few days and was quite frightening. I had severe headaches, and I am not a person who gets headaches very often. Worst of all, I have had SEVERE joint and muscle pain. Twenty years of fibromyalgia was NOTHING compared to this. I had never had neck and back problems before, and now I'm experiencing pain all the time. I get weakness in my arms and legs, and often I feel a strange twitching feeling in my legs and neck. It has been over two months since I had that three-month injection. I'm due to go back for another one in early July, and I've already decided against it. The hot flashes seemed less intense for a little while, but now they're increasing along with night sweats. Nothing helps with the vaginal dryness, so my sex life is non-existent (not that I really care since this has killed my sex drive anyway). I had read about some of the scarier side effects before going through with this and asked my doctor about them, and he brushed my concerns off, saying that this stuff doesn't happen, I would likely just get some hot flashes. I'm very upset that I was pushed into having the three-month injection because now I'm stuck with this poison in my body. I think the pharmaceutical companies push the three-month injections. They got paid by my insurance company, that's all they care about and there's nothing I can do about this now. Anybody know if the doctors are getting kickbacks for pushing this on patients? For me this was follow-up treatment after having surgery to remove endometriosis and to remove one ovary that was severely affected. With that ovary gone I don't even know how necessary it was to follow up with Lupron. I'm 42 and will probably be going into menopause in a few years. Despite endometriosis I was able to have a baby at age 37 and was then free of endometriosis for almost four years. I will say I would probably think this was all worth it if I was going to try to get pregnant again, but I'm not, so I think this was all an unnecessary risk to my health. Anybody with similar experiences or info on Lupron, please feel free to email me at ****** Good luck to all!