Lisinopril and lupus

I am so glad that I stumbled onto this website. I have been feeling bad for over 1 1/2 years with unexplainable symptoms all of which started around the time that I was put on Lisinopril/HCTZ 10/12.5 to help control my HBP. I started out with flu like symptoms, that progressed to terrible headaches onto chest pain that sent me to the ER. I thought I was having a heart attack. I've been to see every kind of Doctor you can name: neurologist (headaches) allergist,cardiologist (heart doctor), hematologist (bloodwork), rheumatologist (to rule out Lupus) all of which can't seem to find anything wrong with me. I mean nothing. I specifically asked my doctor some time ago if my symptoms could be could be related to the new BP meds and he told me "NO". After reading these testimonials, DON'T THINK HE'S RIGHT. I'M GETTING' A NEW PRIMARY CARE PHYSICIAN!!!!!

I was on Lisiniprol for 91 days as an ACE inhibitor for diabetes and kidney protection. All was find except for a constant feeling of burning blood all the time. It was tolerable though.

But on day 91 I developed hives. 14 days after that I was broken out from scalp to sole of my feet -- feeling miserable and no relief in site.

Dr. told me that I was allergic to something and to take benadryl. 3 doctors later I was told that I had hives and had to learn to live with it. He increased my benadryl.

I took myself off all my meds except insulin -- not knowing what was going on. I researched and discovered the this drug should NOT have been given to me because I also have SJOGRENS (an autoimmune disease akin to Lupus).

The hives got worse, my benadryl was increased by the drs. Finally I passed out due to benadryl toxicisity (overdosed) and they put me on prednisone.

To this day -- 6 months later -- I still have hive outbreaks that are miserable. I have missed a day from work every 7-10 days. The prednisone helps, but as a diabetic it sends y blood sugars through the roof. My rheumo has put me on doxepin (an antidepressant) because it has an antihystamine property that seems to be helping.

It is also useful for the rheumotoid arthritis that comes from Sjogrens and such. I am sleepy a lot -- but that could be from the doxepin.

I will never take Lisiniprol or any other ACE inhibitor. I am suffering and the worse part of it: the doctors and medical profession don't care and simply tell me to learn to live with it.

I have been taking Lisinopril for approximately three weeks. Well, I have been experiencing lots of "itching". My appetite has decreased considerably and foods taste quite different. I have Lupus which keeps me tired all the time, therefore I did not contribute my tiredness to the Lisinopril. Now that I have read these comments, I can be assured that the additional fatigue can be connected to the Lisinopril. Otherwise, my bp seems to be better. I suffer with headaches normally, and have not worsened. I have not yet witnessed all the other side effects mentioned. I am, however, thankful for this site. It is good to know what could happen or if my symptoms change, this is an excellent source of reference.
Happy Holidays.

I was on 10 mg. of lisinopril for about 2 months when I noticed that my left foot and my left hand frequently felt heavy, as if they had fallen asleep. My PCP checked me out and confirmed that I was not having heart problems. Then, I also experienced the "buzzing" sensation in my left hand and left foot. This happened frequently while I was taking the drug. I also experienced a burning sensation in the fingertips on my left hand and the muscles in my left arm ached.

Finally, I stopped taking the medication about four weeks ago and the sensations in my hand and foot greatly subsided, athough they did not go away completely. Ironically, a week after stopping the medication, I developed the achy joints (hand, knees and elbows) that many of you have complained about. Now, four weeks later, all symptoms have lessend substantially. I occasionally get a transient achiness in my knuckles and occasionally I feel some of the strange sensations in my left hand that I have listed above.

I just wanted to let those of you that are experiencing strange neurological reactions to this drug know that you are not alone; I went through what you are going through and possibly more and endured some of the worst weeks that I have ever experienced in my whole life; For weeks I was gripped by the fear that I was developing lupus or MS.

So, if you are struggling with some of these problems, be brave and stand up to your PCP and tell her that you WILL NOT take this drug anymore. I'm sure that you will find as I have that quitting lisinopril will restore your sanity and hope of having a happy, healthy future.

I am a 30 year old female,I have Lupus,Fibromyalgia and most recently HBP. I have been taking 10mg Lisinopril for about a month.It has brought my pressure down to a safe level, but I have been experiencing many of the miserable side effects listed in these posts. I have had a mild cough since I began the med, but a few days ago it became so severe I have been unable to rest or sleep. I cough so violently that I become fatigued. My eyes water at night, my head and neck sweat uncontrollably, my skin itches randomly all over during the night, and I am more tired than usual. I can not go another night like this and have decided after reading many posts, to call my doctor and asked to be taken off the Lisinopril. I am hoping there is something else that can be given to me to control the blood pressure without the horrible side effects. I feel much compassion for those of you that are experiencing the problems with this drug and thank you for your input.