Lipitor and fibromyalgia

I have been on 20 mg Lipitor for years, and as I also have Rheumatoid Arthritis, all my symptoms have been blamed on that. I have been diagnosed with Fibromyalgia and put on Lyrica because of the muscle aches and depression. My lower back, hurt in a car accident when I was 17 years old, had gotten so much worse that I had 12 steroid shots in my lower spine a couple of years ago. They didn't help my back at all, but my blood sugar went from normal to diabetic levels, and I am now on Byetta to try to lower it.
I am a 56 year old woman who was the math specialist in a school district until last December when I had to retire early. My back pain was so severe that I could no longer go from school to school carting materials. I could barely make it from the parking lot to my office. Mentally I was not ready to retire, but physically, I was (and am) a wreck. I have severe muscle pain in my shoulders, sometimes one or the other, but always present. I have tingling in my right hand, especially in my fingertips, and have trouble gripping and drop things easily. In the last few months the pain in my right thigh and calf has gotten unbearable. I thought at first it was sciatica, but I have had sciatica before, and this isn't the same, although there is tingling, burning , but the pins and needles is so deep in the muscles I have just sat and cried, or wanted to scream. I have wished I could just cut my leg off. And...I am on some pretty heavy duty pain killers for the RA: a small dose of prednisone plus Enbrel, Methotrexate, and Vicodin, and this pain is cutting right through all these meds. I get severe headaches, I went off Lipitor for 5 days and seemed a little better, but then went back on, and it came back.
Since I no longer work, I sleep longer, am exhausted ALL the time, have terrible mental fog, am clumsy, cannot stand for more than a minute or so without wanting to scream, cannot walk more than a few yards...just getting to the car is an ordeal. I tell people that I can only shop in shoe stores and furniture stores...the only stores with places to sit down.
I no longer cook or clean, cannot play with my granddaughter, even holding a book to read can be too much, and I love reading. I feel I am just dying bit by bit as I lose parts of myself.
My doctor is really into lowering cholesterol, and has put me on Zetia in the past few months...and it has been in this time that the pain in my leg has gotten unbearable. He wants my cholesterol to be between 50-60, and has said that the Zetia along with the Lipitor will do that. Is this normal or in any way reasonable??? I am having a full blood workup done tomorrow morning, and I want to go off the Lipitor starting the day after.
I came across this web site tonight while looking up Lipitor side effects, and I am shocked. I have so many of these symptoms, and there are so many I had no knowledge of at all. I knew about the muscle aches, but that's all. I hope someone can help me with what supplements and vitamins I should be taking. I started taking CoQ10 a month or so ago. What else should I be taking for my health? I know vitamin C and fish oil, but don't know how much or anything else. Right now I am just stunned with the thought that all of these problems that have left me unhappily retired, exhausted and in constant pain can all be caused from a drug I have been taking to help me be healthier.

I am a male of 67 years old. I took Lipitor for a year, and after a few months of taking it, I felt muscle pains in my arms and shoulders, as well as my back. I felt weak and could hardly put my socks on by myself. I told my family doctor that I thought the problem was caused by LIpitor. He said it couldn't be possible, but he couldn't figure out what was wrong, so he sent me to a rheumatologist, who gave me an initial diagnosis of polymyalgia rheumatica. I went back for a checkup, and although the sed rate was normal, the C-reactive protein was elevated. He felt his diagnosis was an accurate one. He prescribed prednisone for me. I had some doubts about it, since I am diabetic, and was concerned about the elevated blood sugar it might cause. Well, it did elevate my blood sugar, and I weaned myself off it within three months. My blood sugar went back to normal, and while the prednisone helped the symptoms of muscle pain and aches, after I stopped it, the pain returned with a vengeance.

About a year passed after discontinuing the prednisone, and I felt worse and worse. Any time I engaged in physical activity, such as yard work, I was almost incapacitated for two or three days. I felt weaker and weaker, and by now, my activity is about ten per cent of what it was three or four years ago. I am unable to do anything physical without paying a heavy price.

I would tell the doctor that I felt the problem was caused by the Lipitor. He would dismiss my comments, saying that the pain should have gone away after discontinuing Lipitor. He sent me back to the rheumatologist with results of recent blood tests. Both the sed rate and C-reactive protein were normal. The rheumatologist touched my back and other areas, which caused me to jump. He said it might be fibromyalgia. I told him again that I thought it was caused by the Lipitor. He said the same thing my GP had said: if it had been the Lipitor, the pain would have gone away when I stopped taking it. I know the Lipitor caused the pain, because I tried red yeast rice for a couple months. The pain increased to almost unbearable, so I discontinued the red yeast rice. If I were not susceptible to the pain from the Lipitor, would the red yeast rice have increased the pain?

So here I am with a fuzzy diagnosis from the rheumatologist, and no clue from my family doctor (that he will verbalize, at any rate). My life has gone steadily downhill. I used to be a strong, active person, but now I can do very little, and my strength is a shadow of what it formerly was. What can I do?

I have been on Lipitor for over a year know after having a heart attack at 43 and having two stents put in. I was diagnosed with Fibromyalgia by in 2002. Recently, I have been having more arm, leg, back, pelvic, hip and hand pain then ever before. I am going to talk to my doctors now about the side effects. I have just know decided to start halving my Lipitor and may ween off of it completely. I'm on Niacin and Zieta in addition to the Lipitor. Have also been having a lot more digestive problems lately...am to be scheduled for a upper GI. I came here looking for info on the fact that although since being on Plavix (didn't realize Lipitor could be culprit) I have had bruising...today I found knots under two bruises on my upper arm. Not only are there knots but they (the bruises) are a different shade of blue (if that makes sense). Thanks to all who have shared their stories.

Let me begin by telling you that I am a nurse with 28 years experience. My father is 76 years old with a history of cardiac problems. He has been on Lipitor for 8 years. In the past two months he has developed muscle pain that had gotten to the point he could hardly walk. His doctor diagnosed him with "arthritis." His joints did not hurt and I questioned his diagnosis. What he has is fibromyalgia. Muscle dysfunction caused by Lipitor. We have taken him off of the drug and he is improving. In place of Lipitor he now takes 2000 milligrams of vitamin C daily. Vitamin C is a natural way to control cholesterol. In my opinion I suggest anyone taking symvistatin in any form should stop immediately. It is a very dangerous drug. If you think this is what you have please request your physician order the following two tests.....CPK and serum myogluten levels. Cholesterol is very important to muscle function and that is why it is produced by the body. Zocor, Lipitor, ( symvistatin) inhibits the production thus lowering the level. Let me add that prior to this condition onset my dad was riding his bike 3 plus miles a day and could out walk me any day of the week. This drug has disabled him. We are hoping for a full recovery but that is yet to be seen.
Thank you ******

I took 10 mg of Lipitor daily for over a year and a half.

This winter the aches in my joints seemed much worse and vague, over-all aching seemed to take over my body at times. The aches seemed to move around and be non-specific at times. I thought I might have fibromyalgia and ordered some kind of balm formulated to relieve that - but nothing seemed to help. I am 69 years old, very active, and suddenly I felt like I was 100 years old. In fact, my father lived to be 99 and he felt better at 99 than I did at 69! I got to the point that I was having nights when I did not sleep at all and I couldn't figure out what was happening to me. My toes went numb on both feet.

On my own I stopped Lipitor 4 days ago and I'm already a new person. I'm disgusted that professionals aren't more reluctant to prescribe this stuff for patients, and once prescribed that they don't monitor patients closely for these symptoms. I'm hoping that my numb toes will not return. Already I'm sleeping 6 hours straight at night. I can't believe this prescription has been getting away Scott free without being treated like a danger to some patients.

I wonder how much "fibromyalgia" is Lipitor-related?

I just found this site after my Dr. took me off of Lipitor. I cried as I read all of the posts that described my symptoms perfectly. Constant muscle pain, extreme "brain fog", joint pain, fatige- all given the diagnosis of Fibromyalgia. I am 56 years old but walk like a much older person due to muscle pain. I experience sharp, sudden pains in my thumbs and often cannot use my thumbs to grasp a cup or fork. Thank goodness I had a doctor that listened when I told him my pain was worse and I could no longer lift my right arm in order to brush my hair or put on a necklace. He immediately said he suspected Lipitor. He took me off it for a month, but wants me to go back on it at a lower dose (from 80 to 40). I have been off for 1 week and my "brain fog" seems a bit better. I feel more like my old self and my patience with my students (I am a school librarian) has returned. I had been so irritable with them lately and didn't know why. After reading the testimonies on this site, I will not go back on Lipitor at any dose. Thank you to everyone who took the time to post. I no longer feel like I'm a "complainer".
Good fortune to all of us who have been so unfortunate to have trusted our health to Lipitor!

Hi
I started taking 10 mg. daily ofLipitor 8 yrs. ago and about a year later I was diagnosed with Fibromyalgia. There's no test for Fibro, just blood tests to elimate everything else ex: Lupus, RA etc. I've been suffering so much from muscle pain, all the tender points as in Fibro and also diagnosed with chronic fatigue syndrome. Three doctors diagnosed me with Fibro. and chronic fatigue. I had most of the symptoms everyone else is complaining about also. The pain in my stomach muscles are just about gone too.

It reached a point three weeks ago when I was having sharp pains all over my body and muscle cramps and charlie horses at night and I could just about walk up the stairs my hips hurt so much that decided to stop Lipitor. I was so tired all the time and in constant pain.

My doctors said it couldn't be the Lipitor. The pain in most of the tender points are just about gone but I know it will take a while to get out of my system. I lost muscle strength over the years and hope to get that back. I'm 64 years old and know it will take awhile .

I went to my doctor Tuesday and told him I took myself off the Lipitor and that I now remember being diagnosed with Fibro shortly after going on Lipitor. He got so mad at me and said that Lipitor doesn't cause a disease. As I said there's no test for Fibro and it's not a disease it's a syndrome or condition where the brain sends pain signals to the tender point muscles but there's nothing actually wrong with the muscles. I told him that 6 years ago when I tried going off Lipitor for 3 months and joined a gym, Curves, I felt fine and thought I was in remission. Then when I started taking Lipitor again I couldn't do the exercise in Curves and had to stop going. It never dawned on me it was the Lipitor.

I now have a problem with my heart, one condition I might have been born with but the Arrthymia I don't know about. My heart beats too many beats and it beats 4 beats and the 5th beat is backwards. Now I'm on 25mg of Topricin (the generic) beta blocker to slow down the heart beats. I don't know if this is caused by the Lipitor or not. My cardiologist said that Lipitor can affect every muscle in your body and she suggested that I get a RX for a blood test to tell whether I have muscle damage. I went for the test Tuesday but haven't received the results yet.

I'm going to change doctors, I don't like my doctor's attitude with me over the Lipitor. These doctors think they're God. When I told him on Tuesday about the 3 months that I felt fine 6 years ago he said that there are other drugs besides statins to lower cholesterol. I don't want to go on any drugs and the non statin drugs can cause intestinal blockage, he got upset when I told him that too. I'm going to try to lower it with flaxseed and fiber and see if that works. I go to Weight Watchers and kept 17 lbs. off for 6 years now, I do try and eat healthy.

I can't believe it cost me almost 8 years of my life in pain. It's even hard for me to get down on the floor with my granchildren, I have to crawl to the couch or chair to lift myself up and I get tired so easily. I just hope I get back to normal.

I'm so glad I found this website and figured out what was wrong with me. I hope my writing helps someone else dignosed with Fibromyalgia and taking a statin.

Thanks for listening.
Marie

I too am taking Lipitor and have been for a couple of years now.
On Nov.19th I was given the diagnosis of Fibromyalgia.
Now I read the side effects and they are they same!

I am a 58 year old man. I was started on Lipitor due to slightly high cholesterol levels. Within a few days, I was feeling flu-like symptoms: sore skin, achey neck and shoulders, I felt pretty much the same as when flu is just starting up. Tylenol would usually make me feel a little better. I also think it was causing some bloating. My doctor suspected fibromyalgia but did some research and has switched me to Crestor ... so far so good. I am also taking the Crestor in the morning instead of at bedtime. I was taking the Lipitor at bedtime and would start to feel the worst effects by early evening.

I have fibromyalgia so when I complained to my doctor about the increased and almost unbearable pain after being on Lipitor it was not taken seriously, also blood tests showed up negative for any problems. Finally after being sent to a arthritis specialist he took me off the drug. He also told me that half of the patients that he see that are on Lipitor have serious side effects even though blood works shows nothing. More than a year off the drug I still have chronic and debilitating tendonitis in both arms and bursitis in both hips- which doctors tell me is highly unusual.

I was put on Lipitor over a year ago. I began having memory problems last Sept. and even asked for an Alzheimer's test. Thing got worse, I now have constant pins and needles in my middle and ring finger of my right hand. My hands ache all the time, and I am constantly on pain killers for the severe pain in my shoulders, thighs and lower legs and my feet.

I have also developed the shuffling walk, and sometimes I cannot decide which foot to put forward first, which is as I understand it a sign of Parkinson's. Today I saw a Neuropath specialist he used a machine which gave me little electric shocks, I will not learn the results of this test until I go back and see the specialist who has diagnosed me with Fibromyalgia. I am also severely depressed mostly because I stopped taking the Lipitor several weeks ago and I am getting worse not better. I feel about 30 years older than my age of 65.

I printed out some of the material I found on the net about the dangers of Statins and gave it to one of my doctors, but so far none of them acknowledge that Statins are responsible. Oh yes and my memory is still as bad. I am seriously thinking of making arrangements for my funeral.

When I refused to take Lipitor the doctor tried to prescribe a different drug but the pharmacist told me that it has the same effects as Statins, so refused to take the prescription.

I have already started taking CoQ10 and Vitamin C.

63 year old female; taking 40 mg Lipitor. About 3 nights a week, can't sleep and feel as if I'm being tormented. Muscles in entire body seem to be contracting (like a reptile) and experience a weird sort of muscle pain (burning pain??) Can't lie still and I turn and toss and moan.
Am trying to determine if this is fibromyalgia or side effects of Lipitor. Can someone please advise??? Thanks!

I took Lipitor 20 mg for 2 weeks. After day 5, I felt like I was getting the flu. By day 7 I could hardly get off the floor. No amount of stretching would relieve the aches and pain. Weak arms, legs and my whole body ached. I operate heavy equipment and could barely climb up on it. Could no longer work out on weights or walk any distance at all. Doc says RA or Fibromyalgia or bad shoulders or it's all in my head. I'm just glad he gave me lots Hydrocodone. Still depleted, looking for energy, trying to find what I lost to Lipitor.

Hair loss, which didn't occur to me until I read the postings - my hair is everywhere in the house but on my head! Muscle pain, weakness, and atrophy, itchy skin and eyes, joint pain (from muscle weakness??) is excruciating - after months on physical therapy was pronounced a failure and referred to a pain specialist and another surgeon. Could not raise my arms w/o terrible pain, hurt to drive my car. Nausea, dark urine, alternate constipation and diarrhea, dizziness.

I don't know whether to be excited or terrified after finding this site and reading the postings. At first reading, the only symptom I have NOT had while on Lipitor is the numbness and tingling in legs and feet. I've been concerned I have some terrible, undiagnosed and terminal disease.

Have had surgery on one shoulder and am awaiting surgery on the other, plus a re-do of a scoped knee which is now unbearably painful. Also have had multiple steroid injections at different sites, and am scheduled for another next week - this time in my lower back. Was put on Paxil for pain, but have weaned myself off that. Was diagnosed with spinal stenosis and fibromyalgia. Wouldn't take the meds for the fibromyalgia because of the side effect mentioned in the literature - HAIR LOSS! I was already losing my hair! Finally found a surgeon who told me to GET OFF THE LIPITOR!

Problem is, I had also been on Bextra at least four years, I think, for long term mild lower back pain, and knee pain, so am wondering if arthritis could have set in and been masked by the Bextra, which I came off of at the same surgeon's insistence. One week later it was taken off the market.

Am now off all anti-inflammatory drugs while awaiting my latest steroid injection, and yes, I do fear the side effects of THAT! My pain is back to the "rocking and swaying" stage, and I'm awake in the middle of the night researching Lipitor! Does it ever stop??

I took Lipitor for 6 weeks. After 5 days I was catapulted into a terrible depression. I reported it to the doctor who convinced me to continue with the lipitor although I decreased the dosage from 20mg to 10mg. After 5 weeks I developed severe leg muscle pain. Four days later I discontinued the drug. Five months later I am still disabled. I feel like I have no muscle control in my left leg and foot and have severe knee pain. I also feel like my knee joint is collapsing. My doctor refuses to believe that this is due to lipitor and has diagnosed me with fibromyalgia. Any hope that this is going to get better?

I took lipitor for one month. I have a history of fibromyalgia and arthritis. My symptoms started about one-two weeks after starting the lipitor. I didn't sleep well, often waking up four or five times per night and having bad dreams. I once again had severe muscle pain, fatigue, and joint stiffness, brain fog, dizziness, and nausea. Most of the symptoms disappeared within 48 hours after stopping the lipitor. However, I continue to have the dizziness and nausea. Does anyone have any advice to help me? Thank you.

I have been on lipitor for five weeks and I've been trying to figure out during this time why I feel achey,sore mucles,stiffness in my joints(feet and hands especially)back ache, just a general overall achey condition. I've had every blood test run to see if I have any signs of arthritis and I don't. People including doctors have told me I probably have Fibromyalgia, so I've been looking for how to treat that, then I read all the side effects of liptor. I am stopping the lipitor today and hope this pain will all go away. I've been extremely healthy all my life (57)until this. STOP TAKING