July 9th
2008
8:15 AM
Saw Levaquin on the news yesterday. I was very pleased to see that they are putting a warning on this med. I thought it was just me with a problem with Levaquin. I have allergies to antibiotics anyways so I attributed my problems to just another allergic reaction to an antibiotic. Wow!
I took Levaquin in April 3 years ago for a respiratory infection of some kind. I then had the same experience I have with allergies where my tongue felt swollen. I called the nurse and she told me to take the next dose anyway. I did so and my chest/esophagus felt like it was on fire. I couldn't breathe. I went into the Emergency room and they gave me a lidocaine/maalox combo that would take the pain away for a while and diagnosed me with reflux.
I went on some reflux medications later that caused more problems for digestion. The more we tried to solve it the more my system reacted. I ended up in the emergency room about 5 times that year. Two were for chest pain from the esophagus and two were from severe allergic reactions (anaphylaxis). I became allergic to many categories of food and lost down to 110 lbs. I went to naturopaths and other specialists and none of them could pinpoint any problems. I was tested for Celiac and had two upper GI and one lower GI that year alone, My Dr. bills totalled more than $5,000 for that year.
The next year I had given up. The only doctor that I would go to was the allergist and the new GI doctor I had found. I still worked but was in such severe pain that I did nothing but sleep when I got home. I cried and begged God for death or healing all night long. I was losing my hair in great handfuls. They put me on ativan and I became addicted to the stuff. I was allergic to most foods. I had a diet of about 6-10 foods that I would cook homemade and I would never eat out unless I knew what and how the food was prepared. I took vitamin c in very high doses and that took the pain away.
I slowly re-introduced food back to my system. Now I have a less restrictive diet but it still is limited. I am now allergic to all nuts, rice, sunflower seeds (sunflower oil is used in most potato chips), some other grains, and melons. I still have problems with legumes and some other foods.
It took 2 years for the pain to subside and I still have digestive problems with diarrhea on and off. I am fine just as long as the pain stays away. I don't mind being limited on my diet.
I had noticed that my legs and joints hurt during that time too- but the other pain was so severe and my diet was so limited that I attributed that to diet.
If there is a class action lawsuit on this stuff I would like to be involved.
May 18th
2008
1:07 PM
took Levaquin 500mg x 5 days end of March ,2008- no problems except still with bronchitis sx.Saw Allergist who said not enough,long enough-put on 750mg x 21 days, again no side effects and got better. after 5 days off, started productive cough so placed on another 16 days of 750mg. On day 13, awoke with terrible pain in knuckles, knee. Completed med as drug book only listed tendon pain not joint pain. Now 4 days after completing, pain in elbows as well as knees, less in knuckles. None of joint pain sx listed on Pharmacy info either.
-- By larjenmom | Reply | (1) replies | Private Message me
November 28th
2007
1:47 AM
My son is 16 years old, a wrestler, and was in excellent health. He developed sinus issues and had surgery on September 17, 2007 (he had a headache on the left side of his head which the ENT said was due to sinus issues). After sinus surgery, the doctor prescribed Levaquin for 10 days. After 4 days, I called his doctor and told him he was getting worse and not better. The doctor said not to worry. After that he had sleepless nights, felt like the room was moving away from him, became dizzy and light headed. Then the joint pain came. First in his thumbs, then wrists, elbows, knees, and ankles. He developed severe headaches in the back of his head. The headaches were moderate to severe and with him 24 hours a day. He became extremely weak and his dizziness continued. He was tested for many diseases through numerous blood tests, had a spinal tap, MRI, MRA, CT of the spine, CT of the sinuses, x-rays of the knees, and an EEG. All came back normal, except his sinuses were still swollen which is normal after sinus surgery. He has seen numerous medical doctors (primary, pediatrician, two neurologists, allergist, two Ear Nose Throat) and is now seeing a pediatrician in UCLA and has appointments to see more UCLA doctors.
He has been out of school now for a couple of months. Luckily, the school has him on home instruction and sends teachers to the house and he is maintaining his honors classes. To give you all hope, he does appear to be getting better, but it is a very slow recovery. Up until two weeks ago, some days were okay and some days were pretty bad. It comes and goes like that. At first I never suspected Levaquin, but stumbled across the side effects when I was trying to research what was wrong with him. The only thing I found that had helped some people was taking high doses of magnesium (the kind ending in "ate" is better absorbed). I was and still am nervous about giving my child a lot of any type of vitamin, but no one was able to make him better, so I gave him 250 mg three times a day for three days. It could be just a coincidence, but about 3 days after I stopped giving him the magnesium, all of the joint pain was gone except for his knees, which still hurt if he bent down.
After a couple more weeks, he still had severe headaches, knee pain, some dizziness and some weakness, so I thought I would give it another go and gave him magnesium three times a day for 4 more days. After the 4 days of magnesium, he started on a new medication called Lyrica. His knee pain is almost gone and his headaches are minor with only an occasional flair up. I can see in his eyes and how he reacts that his is feeling better than he has in a long time. He has always been a happy kid, but I can tell he has his special spark back.
For the last two weeks, I just give him one 250 mg of magnesium a day, multi-vitamins, and Lyrica. By the way, one of the blood tests I requested was for magnesium, and it showed his level was normal. So, I have no idea if it is time that is making him better, the magnesium, or the fact that he is taking Lyrica. He will still continue to go to the doctors, none who believe Levaquin could be a cause, until he is completely back to normal. I believe that Levaquin was likely a culprit in his overall health issues, especially since no one can figure out how my healthy, energetic son suddenly became so ill he could no longer go to school. For the past two weeks now, he has had good days mixed in with okay days (no bad days though!!!) He has had only 2 weeks so far of better health and we hope it continues to get even better. Good luck to all of you and my prayers are with you. I hope somehow this will help someone.
-- By martinsmom | Reply | (2) replies | Private Message me
September 13th
2007
3:53 PM
Unfortunately I also experienced such side effects from Levaquin to the degree that I feel I was poisoned. I was prescribed Levaquin April 2004 and a week later developed a 2" x 1" oval rash on my front hip area and had severe muscle aches and joint pain. My doctor prescribed a fungus cream for the rash (what???) and ran extensive blood and urine tests. The rash began multiplying daily until it covered half my entire body.
More tests (scared me to death -testing for Lupis, HIV, Hepatitis, etc.)
After all negative, he suggested I see a dermatologist and an allergist.
Rash worsened, could not sleep at all, not sure if it was from constant itch?? Non of the prescriptions from the dermatologist worked but a sample packet of "sarna or sarno?" helped dull the itch. Now it was a month since I started the Levaquin. A friend drags me to the ER. They actually get a cop in there to ask me if I have been beaten...um, no...I did it to my self..All the itching has caused me to scratch myself to the point of bruising all over. They ran a few tests and came running in with 2 doses of benedryl shots...said my eosinophils level was off the charts and that I had been having an alergic reaction to "something". Ah!! (duh!!) So I go home and search the internet... severe red rash, itching, insomnia, muscle aches, joint pain, allergic reaction....what comes up...levaquin levaquin and more levaquin. How did my own doctor who prescribed this to me not realize that this was an allergic reaction??? Most of my symtoms subsided 6 weeks later (after filling the scrips from the er for benadryl, prednisone and something else) but it was truly 6 weeks of hell and for a while there, I did not think it was ever going to end. Hope this info helps anyone who thinks they may be having a reaction to levaquin.
August 14th
2007
12:28 AM
OMG, I was on Levaquin for approx 4-5 weeks, 500mg twice a day. I have muscle aches, deep body aching, feel like I ran a marathon, my feet hurt so much that I have to limp when I get up to walk, my legs feel like lead, strange pains throughout my body at any time of day or night, my right foot swelled slightly, and my right hand is stiff and I have to pry it open in the morning. Today I felt so weak, I thought I would pass out.
I've been off this drug for almost two weeks now, with no end in sight from these side effects. Why the heck are doctors still prescribing this drug. Anybody interested in a class action lawsuit against the manufacturer?
July 4th
2007
7:57 AM
I am normally a very physically fit specimen, working outside every day. One 500 mg. tab of this poisencompletely debilitated me. Within six hours of taking levaquin I experienced excruciation soreness in my arms and shoulders. My throat swelled up and I could barely breath. I was perscribed steroids to stop the swelling - I took only ONE 500 mg time release tab 7 days ago and today I am still experiencing incredible pain.I am so sore I can't sleep. If anyone wants to start a call action suit I am in - I have NEVER sued anyone - but I am furious.Any advise out there as to how I can flush this poisen out of my system?
Chris
November 30th
2004
11:18 AM
I took levaquin for bronchitis after being on amoxicillin for 10 days already and not responding well. So starting Nov 3rd I took this drug ( levaquin ) for seven days, I felt horrible tired sick nauseated and having calf muscle cramps, I finished the medication and before I finished it also started breaking out in horrible itchy hives that i am still being plauged with as of the 23rd of nov, have been to the dr three times and am giong to an allergist on dec 16 for skin patch test, now I am wondering if the hives are being caused by anthing at all EXCEPT the Levaquin after stumbling upon this site ( thank God for that) i was wonderin exactly how long this drug stays in your bloodsteam. I thinking that pehaps my body immune system has attacked this drug for the poison that it is
-- By christine814 | Reply | Private Message me
May 11th
2004
1:43 PM
Thank you to those who wrote me with words of advice. I'm now 14 days out from levaquin and am feeling a bit better. I have had a complete physical and blood workup. I've also seen an allergist, a rhematologist, two ER doctors and my primary care. My primary care and one ER were at the Cleveland Clinic and advise that it's the levaquin. I have yet to run across a doc who didn't say it's the levaquin. I was sure it was MS, ALS or something worse than an allergic reaction. I am getting a little better and hope I continue on this path. I wanted to share the list of meds the allergist told me to NEVER TAKE and even suggested that I get a med alert braclet. It appears that if you have a bad reacation and take the offending agent again, next time will be worse including shock. My daughter who is an RN also agrees with the medic alert braclet. She said that if I were ever in a car wreck, one of the first things they would do in the ER was start an antioboitic IV.
The meds in the same family to avoid are:
Cipro, avelox, faxtive, levaquin, varoxin, tequin and trovan.
This same Dr. (the allregy immunology doc) says that I have had nerve damage, that I should fully recover and that it will not get worse.
My symptoms were mostly pain in my limbs, if you have had the pain in your limbs at the least please put a note in your wallet that says that you can not take the above listed drugs.
Hope this helps. God bless
Taunda
******
-- By taundaleah | Reply | Private Message me
November 16th
2008
2:38 PM
I have been prescribed cipro 2x for diverticulitis and has adverse reactions (after completing the recommended prescription) to dairy and fruits (citrus acid). When another bout of diverticulitis occurred, I asked my doctor not to give me cipro. He does some research and prescribes levaquin. I completed the prescription and now more than ever have adverse reactions to dairy and fruits and anything that has whey or citric acid in it. I think this is just the tip of the iceberg of exactly what I am allergic to. I have done extensive research of the adverse reactions from cipro and levaquin which for me once I eat these particular foods is extreme case of hives and skin rash. I have to take benydral. Sometimes it helps and sometimes it does not. I went to my gastroenterologist and allergist with complaints from taking these drugs and they have told me they have never had anyone come to them with complaints. Who are we kidding? With all the reading I have done, these drugs are poison. Although I know I am among the extreme side effect category, I need help and I can't get it anywhere. I have also read that these quinolone antibiotics are given to the animals, foul and fish that we eat. So does that mean we are ingesting extra quinolone into our systems when all we want to do is have it wear off? My wife feels that we should eat organic meats. I tried organic milk and I have reacted to it. I just want a bowl of cereal and a normal cup of coffee. Whey also gives me hives. Whey is in almost everything and so is citric acid as preservatives. If there are anyone of you out there that is or has experience similar to what I am, please let me know. My doctors cannot help me,nor do they seem to really even care. My wife has given them a lot of information she has been downloading from the computer. Hope this wears off soon. Every time I take one step forward, I wind up taking two steps back. Where is the help out there that we need? Since we are the minority who suffers from these drugs, doctors don't care until they have to deal with it. What is wrong with our medical society?
-- By shock | Reply | (1) replies | Private Message me