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Kenalog and lupus

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50 Side Effects posted for Kenalog

October 28th
2008
12:19 AM

My hair is falling out too!! Since January I have had 2 kenalog shots for allergies and 2 shots for poison ivy. My side effects are hair loss, depression, headaches, bruise easily, swollen joints, weight gain, and a dent on my rear. These effects did not start until I had 2 shots, now it is so severe. I was so scared when my hair started falling out but knew that I didn't have Lupus or Diabetes which could cause the same side effects...I have been tested for both and do not have either.

Please let us know if there are anymore out there who have hair loss because of the Kenalog Shot.

-- By i_candi | Reply | Private Message me

September 17th
2008
9:13 PM

I thought I had Lupus because I had complete body aches for weeks. My bicep muscle in my right arm would feel like it was locked. I would wake up every morning feeling like I was in a car accident the day before. Once the body aches went away, I got blurred vision, burning in my eyes, headaches, fatigue, depression, problems concentrating... I just got this shot in June. I hope it metabolizes quickly and leaves my system w/o further side effects. I hope the indentation at the injection site fades away in time but I think it's permanent because the tissue has dissolved and the fat cells were destroyed. I wouldn't feel so bad if the indent wasn't in my face!

-- By nas33 | Reply | Private Message me

September 16th
2008
5:07 PM

I can't attribute this directly to my cortisone shot - however, I've noticed that the past few months I have been losing my hair. I can pull it out virtually by the handfuls anymore! I am only 24 - this doesn't seem normal and the only change I could point to is the shot. HAS ANYONE ELSE HAD HAIR LOSS THEY CAN TIE TO A CORTISONE SHOT?

I also noticed a change in my period. Nothing as extreme as I'm reading here - but I'm so glad to have read this - puts my mind more at ease to know have a cause for that.

I have tried other remedies - but the cortisone shot has been the only thing to actually work. Any other ideas?

-- By brandy001 | Reply | (2) replies | Private Message me

July 4th
2008
8:18 AM

I did a post a few days ago--but must add to it. I have SLE, MS, CAD, HBP, having 5 stents, asoteoporosis, arachnoiditis, cerebritis/vasculitis from lupus, chronic pain(fibramyalgia) and a bucn more that ill give u sum idea. I am also a RN for28 years and KNOW what medications can do. I mena come on lets face it--if we ALL read THOROUGHLY all the inserts with ANY medication--NONE of us wud take any of it. Even ADVIL and ASA have horrific side effect.!! I saw my doctor yesterday afternoon due to this rash--not my typical lupus reash---doesn't look like discoid lupus, it begins on my chest goes uop my face then all down my back then gradually works its way down my leg---it gets rasm, macular and some some end up with a popular looking area. The PAIN from if is almost as bad as the itch from the rash. I have had shingles and it is similar to that pain. I have been putting topical steroid base creams all over to no avail. I begged my doctor for the KENOLOG shot and discussed GREATLY the side effects: I have had a hysterectomy so that is nothing, it cause cause a psychosis, depression, panic racing thots insomnia--basically ALL the side effects everyone has mentioned---but IT WORKS -I JUST GOT UP AND THIS DIFFIGURING DISCUSTING RASH ALL OVER IS ALMOST 90% GONE!!!! Like I said I have been on steroids most of my life--and I KNOW the side effects of them--PERIOD. Educated patients READ the inserts and ask their doctors---all meds have risks but the questio is does the risk outweigh the benefit t
??????????? I am on a mediation that has you with an increase of 10-15% increase of having an heart attack--which I have had two--but I CHOOSE to take it becuz the benefit outweighs the risks. I understand 100% all the complaints concerns and everything, attorneys will NOT take cases where the medication is used and adminierted the correct way--esp. when the side effects are clearly listed. Doctors are TOO freaking bust these days to sit and TALK and explain every side effect with each of their patients. Does each of you know that the average physician HAS TO SEE at least 60---yes sixty patients A DAY???? That is actually in their contract--thata approximately 7 and a half minutes ith each of us.!!!!!!! Make a list of all ur concerns, questions etc for the doctor and I do this ---I manuaver my chair to in feonrt of the door and I DO NOT LT THE DOCTOR OUT until he has answered ALL my concerns---yea they get mad tell me I can't do that--and my response is is IF YOU can make me wait in ur office lobby for more than an hour--I will do what I have to do to get proper CARE!!! Shuts most of them up. But I am lucky I do have 6 of the most careling and compassionate physicians--I have lucked up--I have had my share of "stupid" doctors but-hey WE are the patient-=-go to another one until ya get one ya like. If you go to other website about medicine there are many more complaints and unhappy patients with medications they take. But I understand where all of US are coming from---Doctors are no different than us--and they are not GOD--they make mistakes and as long as they don't KNOWING harm you---or commit fraud--no lawsuit happening---now sueing the MAKER of kenalog MAY be a possibility( my sisiter is an attorny) thats her advice and itd have to be a class action suit and its kinda sad--patients don't ever get much in things like this but its worth a shot!!!

-- By love6kids | Reply | Private Message me

March 28th
2008
4:11 PM

I received the Kenalog shot in January. I started feeling tired and muscle aches, which I thought was just a virus. Then a dent appeared on my arm 2 weeks ago, and my muscles surrounding the maroon color dent began to tighten. I now have tendinitis in my shoulder and arm and I have lost all strength. My doctor said it could be from the shot, but stopped seeing me. i am going for an MRI on Monday because of the damage and pain that is non stop, and they are trying to figure out what is wrong. I have had several blood test because they swore I must have Lupus, or Rheumatory arthritis which came back negative.
I am very frustrated. I am a server by trait, I am a mother of 5, and it seems like my life is changed. I can't work, no one can give me answers, and I would like to know if these symptoms will go away or if I am stuck with this arm atrophy forever.

-- By enchantresskiya | Reply | (2) replies | Private Message me

September 1th
2006
5:00 AM

All I can say is that I sound like guest no. 2kclark. Same age etc. I have 3 herniated discs, need artificial disc surgery but thank god i have been scared and skeptical since law suits are coming out on the charite disc. further i was then diagnosed with CFS (EBV) and fibromyalgia and AS (ankylosing spondilytis). I also apparently have a rotator cuff tear....all because of incidents at work...of which i am embroiled in a heated law suit over. my rheumatologist has given me 2 shots over the last 90 days. this last one was 2.5 weeks ago and i am still hardly walking around because of it. i feel like i have the flu and any act of normalcy is completed with shear painful effort. i called another doctor who wanted to inject my spine and told them that i was not having any injections for awhile bc of the reaction that i had to this 'kenolog' shots. to my surprise the lady said yes she had heard about those - the are like 'chemo'. her friend has lupus - she said others patients have had something but not sure what, and they are having a hard time with the shots. apparently 3 bad weeks then 1 good week just to go back and get another shot. well not me. just thought yall might want to know this. it apparently is for the pain? which is what i got it for....which it helped that but the fatigue and numbness across my entire body and the feeling of dying, i think i would rather have the pain. and no, i was not told of the effects either.

-- By 2tlroberts | Reply | Private Message me

July 19th
2006
7:25 PM

I can hardly believe what i am reading!!! I have taken Kenalog shots for LUngs (Lupus??) and etc..... over the past three years. This year I noticed two huge indentions on my behind. I kept thinking what in the world??? I am 60 and in pretty good shape but when i saw that i had no idea that it came from that!!!!!!!!!!!!! I ride a 650 yamaha v-star while my husband is on a kawasaki!! It was the control thing!! I had to have my own motorcycle. Anyway i notcied this summer my seat did not fit my butt right!!! Now just another answer to the weird side effects of medicine. I am SO SICK OF IT I COULD SCREAM!!!! WHY CANT THEY BE HONEST?? Ok please girls keep on posting to this sight!! I thank u all for sharing, and keep on keeping on ONE DAY AT A TIME!!!!! The bad thing about this whole deal is it helps me to feel better!! Is there anything else out there to take besides the Kenalog??? thanks again, glo

-- By gaharris7787 | Reply | Private Message me

July 31th
2005
1:31 AM

I got my shot a few days before my wedding and it was the best gift ever. Before the shot I spent four years dragging myself around with lupus and chronic fatigue. Prednisone made me insane and miserable. I've felt like my old self again, for the first time in four years. I didn't have to sneak out of my own reception to take a nap. It's only been 6 weeks and I think it's wearing off. I wish it would never wear off. Reading these posts, it appears that as with other steroids, it is a trade-off. I'd gladly walk around with a dent, just to be walking around.

-- By jjcali2000 | Reply | Private Message me


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