September 1th
2006
5:00 AM
All I can say is that I sound like guest no. 2kclark. Same age etc. I have 3 herniated discs, need artificial disc surgery but thank god i have been scared and skeptical since law suits are coming out on the charite disc. further i was then diagnosed with CFS (EBV) and fibromyalgia and AS (ankylosing spondilytis). I also apparently have a rotator cuff tear....all because of incidents at work...of which i am embroiled in a heated law suit over. my rheumatologist has given me 2 shots over the last 90 days. this last one was 2.5 weeks ago and i am still hardly walking around because of it. i feel like i have the flu and any act of normalcy is completed with shear painful effort. i called another doctor who wanted to inject my spine and told them that i was not having any injections for awhile bc of the reaction that i had to this 'kenolog' shots. to my surprise the lady said yes she had heard about those - the are like 'chemo'. her friend has lupus - she said others patients have had something but not sure what, and they are having a hard time with the shots. apparently 3 bad weeks then 1 good week just to go back and get another shot. well not me. just thought yall might want to know this. it apparently is for the pain? which is what i got it for....which it helped that but the fatigue and numbness across my entire body and the feeling of dying, i think i would rather have the pain. and no, i was not told of the effects either.
-- By 2tlroberts | Reply | Private Message me
May 18th
2006
10:25 AM
have used kenalog/xylocaine injections over the years for hip and LS Spine pain due to Fibromyalgia, but never more than 1 injection every 3 months. When I saw my rheumy on5/9/06, she said she would NEVER give just one. She insisted on giving me 4 ! one in each hip and 1 in each buttock. She said she's given as many as 5 at a time, every 5-6 months, with no problems. I have so many probs with allergic reactions to so masny meds, I was petrified. But she's always done well for me, for 17 years. Other than having sleep probs, I was walking and having full mobility in 2 days. However on 5 17/06 I began having severe body wide itching. No welts, but appears to be hives. Do you think there's a connectin to the injection? I'll call my pharmacist today and see wehat he says. Can't narrow it down to anything else. Any ideas?
-- By upstrzmaid | Reply | Private Message me
September 10th
2004
10:49 AM
Kenalog 40% 2cc in shoulder. Depressed pituitary/adrenal function- cortisol levels went to nonexistent. ACTH levels non-existent. Neither adrenal nor pituitary funtioning- had to take small dose of prednisone (2 mg) for ten days to keep from going into adrenal crisis- never felt so exhausted, so weak in my life- and I have fibromyalgia. Moon face, FACIAL HAIR on the sides of my face (and loss of hair on scalp, under arms, legs)- and I am a very fair Caucasian FEMALE- will this hair GO AWAY- one endocrinologist says yes- in 1.5 years, another says no, the dermatologist has never heard of it, and the orthopedic surgeon who administered the shot into shoulder says he has never seen this reaction. MD'S ARE PATHETIC- 35% OF MEDICAL DIAGNOSES ARE INCORRECT.
Yes- it relieved the pain in my shoulder- torn labrum- temporarily, and it cleared up my facial eczema- temporarily- but at what COST. I have been an invalid for the three months since the injection, although my cortisol levels are starting to rise again. Also- had ALLERGIC reaction at time of injection- about two minutes after the shot, I had problems focusing my eyes, was nauseated, disoriented, had diarrhea- was told this was an ANXIETY reaction- even though I went to the ER later, they also told me "everything was fine."
ANY EXPERIENCE WITH FACIAL HAIR- is it reversible with time? In despair....
August 5th
2004
8:43 AM
I had been suffering from severe allergies for about 10 years and had been through the desensitizing shots, antihistimines, and whatever else one can imagine. I was a human dartboard for some of the allergists I consulted. Finally, this past Spring, my GP suggested that I try a Kenalog shot. At first I declined because I knew there could be complications with taking corticosteriods. After a month or two of suffering with the allergies and my fibromyalgia in full swing, I decided to get the shot. The difference in the allergies was like night and day. And the bonus to the treatment was that my fibromyalgia was decreased and a pressure buildup in my left ear subsided. Yes, I experienced longer and heavy periods, and occasional acne (which I was able to control with topicals), and I'm certain if I made the effort I could attribute other oddities in my life to the shot. However, I have been miserable lately since I believe the shot is wearing off. After reading all the horror stories on this site it has made me wary of the use of Kenalog. But we must remember that not all humans react the same way to all med.
-- By servant40 | Reply | Private Message me
September 29th
2008
11:49 AM
Im also a victim of the Kenalog shot. I was having pain due to what fibromyalgia. I couldn't see my regular doctor because she is a great doctor and its very hard to get an appointment with her so I took an appointment with another doctor at the same office because I needed relief from the pain soon. This doctor said the steroid shot would kill the pain right away so after the visit with him the nurse gave me the shot. Ever since then I haven't been the same. My hormones are all out of whack, with 2 long periods a month , bad migraines, hot flashes. Not to mention the ugly deformity I have from the sight wear I got the shot on my butt. The dent started small and is now bigger. Im so upset. I had no plans of becoming a model or anything but this is my body and now I feel uncomfortable in the nude!!! Im outraged and hurt. If I knew that this would happen I would have never excepted this stupid shot that didn't even really help me!!!! I have self esteem issues like most women now I have to add this pointless deformity on top of everything!!!
-- By avengelyne | Reply | (1) replies | Private Message me