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After reading all the horror stories on here, me and my husband s...

Posted at 8:51 PM on Jul 02, 2008 by rtorzewski, #32008
After reading all the horror stories on here, me and my husband soon began to realize that we were having a lot of the side effects listed here and not listed on my son's actual Singulair prescription. The side effects my son had were behavioral changes, irrational behavior, inattentiveness, not able to stay on task or stay still -- in fact he broke his arm twice being so hyper, yelling, screaming and just plain mean. We took our son off of Singulair as a trial for a few days. Immediately we began to notice differences in his behavior. He wasn't as agitated and quick to yell or get angry. (He's only 5 years old). He actually would be listening when we would speak to him. He would sit calmy and read books and the one huge thing he would do was look at us and smile. He even said to my husband once, "I love you Daddy," which just brought tears to our eyes. I never realized what a Singulair fog he was in and what it did to him. Here we were pretty close to getting him evaluated for ADHD or even Aspergers. So now we're in the same boat as others that are searching for other asthma meds to give my son. Right now we have gone back to Pulmicort, Xopenex, Nasonex and Allegra. I'm so glad I read this forum because I was desperately searching for answers for my sons behavioral issues. Oh, by the way he was on Singulair for 1-1/2 years.
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Reply 2 months ago on Jul 17, 2008 by gokathymac, #10230

Hi - I'm glad to hear that your son is doing much better. My son started singluair in 4th grade and ended up in serious psychological trouble by 9th grade. No one ever made the connection to the singulair and he saw several different doctors about his depression, anxiety etc. I'm no doctor, but I think you should still be watching your son very carefully because of the allegra. My son also took allegra and so did I. I stopped it back when my son stopped his Singulair and have noticed a marked improvement in my own mood. On his own, my son decided to stop taking Allegra too. It is amazing how much his mood has improved -- primarily I'm sure because of the singulair, but removing the Allegra has also helped. The fact that he's 17 has made this more possible because his lungs and body are more mature. I remember horrible bouts of bronchitus and breathing problems when he was a young child -- which is why he ended up on this stuff to begin with. You might want to look in to alternatives to the Allegra. I'm carefully trying Zyrtec and steroid nose spray now that my allergies are kicking up again. When I talked to his current therapist about the singulair (he's back home now after being at a therapy boarding school) she thought that based on his history, we have to be particularly careful with ANY kinds of meds relating to breathing since a lot of them have similar side effects. I lost many years with my son because of these drugs and I hope by sharing that you won't have the same loss with your own son. Good Luck.

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Reply 3 days ago on Oct 08, 2008 by jamiebargen, #13229

My son was on Singulair for almost 3 years (He is only 5) and he was hyper, disruptive, could not focus, very impulsive. We took him to be evaluated for ADHD, after completing all of the written tests, he came back negative, but after the psychologist spent a lot of time with him, he diagnosed him with ADHD. Then, we heard of all the side effects of Singulair, we took him off and noticed a big difference in his behavior. We went ahead and set up therapy with an ADHD specialist. We went to our first appointment (off of the Singulair) and were told that he does not have ADHD, he has a lot of energy and he is just a boy. We were very concerned with kindergarten and were assured that he would be fine. He has been in kindergarten for about 2 months now and he needed and continues to need a lot of redirection, but he is able to learn. He has been on Nasonex the entire time too. Well, he had a sinus infection and saw his pediatrician 3 days ago and she advised us to refill his prescription for Nasonex. We did and began giving it to him and his behaviors increased instantly. The kindergarten teacher told me this morning that he talks constantly and will not be quiet and she is very frustrated with him. We have decided to take him back off Nasonex and use Saline to clear his sinus. He also has asthma and when on his asthma meds, he is unbearable to be around.

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Reply 3 days ago on Oct 08, 2008 by rtorzewski, #13232

You just described my son perfectly. I cannot believe how similar they are. My son also has asthma and reactive airways. After he stopped the Singulair we did notice some improvement, but there were still some other issues he was having. He also is on Nasonex and Pulmicort and Xopenex as needed. That is interesting about the Nasonex causing hyperactivity. I will have to look into that. My son is also in kindergarten and is having trouble with sitting still, distraction, listening, etc. He also was evaluated for ADHD and his doctor thinks he may have it, but I want to wait a while and see how he improves as I really don't want him to be on more meds right now.
Thanks for the reply. I"m glad you son is doing well off Singulair. My son's asthma just flared about a week ago but he did okay. Of course he had to be put on oral prednisolone (which really makes him crazy -- but that's another story). But again he is SO much better off the Singulair.

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