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Read my symptoms first; at the bottom it will tell you how long I...

Posted at 11:41 AM on Jun 29, 2008 by nancyinnh, #31892
Read my symptoms first; at the bottom it will tell you how long I had the IUD and the time line of the symptoms. constant pelvic discomfort (sometimes to the point where Advil usage doesn't even help) ("zaps" or "pings" of pain...light lightening bolts) almost constant bleeding (sometimes with clots - in differing sizes) (coloring can be bright red to burgundy and brown) (odor from the bleeding is very noticeable) immediate weight gain (this includes severe abdominal protrusion) (I belly dance, & the costume I had just worn 2 weeks prior to insertion no longer fit) severe swelling of the extremities (hands usually do swell in hot weather, however, I've never had my feet and lower legs swell up like this - I had elephant feet/legs) immediate acne issues (my skin is always clear except for a few during my period) moodiness brain fog (I'm a bookkeeper, & I noticed an immediate problem with my making stupid mistakes or taking longer than normal to resolve usual issues in this regard) clumsiness (could be attributed to the brain fog) breast tenderness (feels like someone's constantly squeezing/poking them) movement of the IUD (I could feel that it was out of position; it was more on my right side and caused ALOT of discomfort) Here's the kicker, ladies. This was all within 1 WEEK of USE. I demanded removal of this nasty thing & the GYN office refused. After two more weeks of hell, I insisted, & they finally removed it. This is what I experienced AFTER the removal: Immediate relief in my pelvic area, BUT, still having pelvic pain. INTENSE bleeding & clotting. To the point where I bled through my clothing at work (yes, I was using tampons & heavy pads). The GYN's office didn't seem concerned; they said this was my body's "normal" reaction. (yeah, right). I finally stopped bleeding a good 5+ days later. Even more breast tenderness. Weight gain/bloat has not gone away. (I'm quite active) Still experiencing brain fog. Acne is starting to dissipate. I have a ****** Group set up to shout to the world about this horrid device; look for: mirenajustsayno Report your experience directly to Mirena; they have a contact # to report an "Adverse Reaction". From there, file a report with the varying health organizations. On another note, I also had several ultrasounds done at the GYN's office prior to the insertion. The DR stated I had no ovarian cysts, no fibroids, BUT, my uterus was overly large. I sounded at a 10 as opposed to the usual 8. I was told it didn't matter, that I was a good candidate. He also stated that I had "a little endo". (The reason for my use was to control the heavy bleeding during my period, along with the severe cramps.) Well, I had some ultrasounds done at the hospital late last week, about 10 days after the removal of the Mirena. This is the result: irregular complex cyst on my left ovary unusually thickened uterine wall (no other explanation other than it was thicker than average) It was noted that the series needs to be repeated. (I'm assuming they want to look deeper) Note that I have not resolved whether or not there was any perforation from the IUD moving out of place; the GYN never ran an ultrasound to verify it - they just did a regular exam & told me "it was still in my uterus". (that exam initiated severe bleeding for several days as well) Good luck and let me know how you're doing! And, yes, I do have several friends that LOVE their Mirena.
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Reply 2 months ago on Jun 29, 2008 by nancyinnh, #9627

I forgot to mention:
Mirena has it noted in their website that if your uterus sounds between 6-9 you're a candidate for use. While it's not "printed" the Mirena rep did tell me that anyone over a 9 is NOT a candidate and SHOULD NOT have the Mirena.
This information is not readily available to the public. It's found in the physician's side of information. Not something that the general public has access to or the knowledge of in order to make an informed decision.
That means, ladies, we are left to rely on the advice of our doctor's.
That is NOT always a good thing. Especially when the knowledge source is basically a piece of literature from the Manufacturer.
Oh joy. Makes me lose the warm feelings of security in a heartbeat.
I'm devastated. I have been going to this office for more than 18 years and I'm left with the general attitude of "well, you should've known to up your Advil usage", and "why wouldn't you want to have your uterine wall burnt out as an option"? OMG.

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Reply 2 months ago on Jun 29, 2008 by mrsnelson78, #9634

This information is really helpful. Would you mind if I quoted you on my Mirena support forum?

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Reply 28 days ago on Aug 08, 2008 by cmayes, #10890

I hear ya sister - I had mine for 1.5 years and had crazy symptoms that I just pieced together that they were all related to the mirena. I have had severe headaches, severe hot flashes, 40 pound weight gain, pain and pressure in pelvic region, back pain, arthritis, acne, anxiety and depression. I went in to have it removed and the doctor couldn't find it. I am scheduled to have surgery in 3 days to have it removed. Lord knows what kind of damage this has caused to my insides. Hope you are doing better now.

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