Support forum symptoms and conditions

Read my symptoms first; at the bottom it will tell you how long I had the IUD and the time line of the symptoms.

constant pelvic discomfort
(sometimes to the point where Advil usage doesn't even help)
("zaps" or "pings" of pain...light lightening bolts)
almost constant bleeding
(sometimes with clots - in differing sizes)
(coloring can be bright red to burgundy and brown)
(odor from the bleeding is very noticeable)
immediate weight gain
(this includes severe abdominal protrusion)
(I belly dance, & the costume I had just worn 2 weeks prior to insertion no longer fit)
severe swelling of the extremities
(hands usually do swell in hot weather, however, I've never had my feet and lower legs swell up like this - I had elephant feet/legs)
immediate acne issues
(my skin is always clear except for a few during my period)
moodiness
brain fog
(I'm a bookkeeper, & I noticed an immediate problem with my making stupid mistakes or taking longer than normal to resolve usual issues in this regard)
clumsiness
(could be attributed to the brain fog)
breast tenderness
(feels like someone's constantly squeezing/poking them)
movement of the IUD
(I could feel that it was out of position; it was more on my right side and caused ALOT of discomfort)

Here's the kicker, ladies. This was all within 1 WEEK of USE.

I demanded removal of this nasty thing & the GYN office refused.
After two more weeks of hell, I insisted, & they finally removed it.

This is what I experienced AFTER the removal:
Immediate relief in my pelvic area, BUT, still having pelvic pain.
INTENSE bleeding & clotting. To the point where I bled through my clothing at work (yes, I was using tampons & heavy pads).
The GYN's office didn't seem concerned; they said this was my body's "normal" reaction. (yeah, right). I finally stopped bleeding a good 5+ days later.
Even more breast tenderness.
Weight gain/bloat has not gone away. (I'm quite active)
Still experiencing brain fog.
Acne is starting to dissipate.

I have a ****** Group set up to shout to the world about this horrid device; look for: mirenajustsayno

Report your experience directly to Mirena; they have a contact # to report an "Adverse Reaction". From there, file a report with the varying health organizations.

On another note, I also had several ultrasounds done at the GYN's office prior to the insertion. The DR stated I had no ovarian cysts, no fibroids, BUT, my uterus was overly large. I sounded at a 10 as opposed to the usual 8. I was told it didn't matter, that I was a good candidate. He also stated that I had "a little endo".
(The reason for my use was to control the heavy bleeding during my period, along with the severe cramps.)

Well, I had some ultrasounds done at the hospital late last week, about 10 days after the removal of the Mirena. This is the result:
irregular complex cyst on my left ovary
unusually thickened uterine wall (no other explanation other than it was thicker than average)
It was noted that the series needs to be repeated.
(I'm assuming they want to look deeper)
Note that I have not resolved whether or not there was any perforation from the IUD moving out of place; the GYN never ran an ultrasound to verify it - they just did a regular exam & told me "it was still in my uterus". (that exam initiated severe bleeding for several days as well)

Good luck and let me know how you're doing!

And, yes, I do have several friends that LOVE their Mirena.

Ladies, I love your input. I just have a hard time tracking back. If anyone is interested, I've created a message board style support forum and I hope you'll check it out. If it gets removed, email me and I'll send you the link:

mirena is bad . proboards83 . com (no spaces)

For all of you suffering on this board I strongly suggest you log unto www.fqresearch.org where you will find over 4000 medical journal entries, case reports, etc., that detail the horrendous damage these drugs are capable of. You will also find a link there for a support forum hosted by yahoo that everyone here is invited to join.

We have been fighting with the FDA since 1999 to get "Black Box" warnings as well as "Dear Doctor" letters sent. Had this been done I doubt that most of you would be suffering like this. This class is a drug of LAST RESORT, and it is not approved as a first line agent for ANY disease state.

It is both shocking and appalling that we see people coming on this site promoting the use of these drugs and chasing you for suffering a reaction. I can assure you this is not "in your head" by any means. These severe adverse reactions have been documented since 1982 within ALL of the leading medical journals. They are THE most toxic and dangerous antibiotic in clinical use today.

But the FDA refuses to provide adequate warnings within the package inserts and Public Citizen has had to SUE them in Federal Court to even have them review their petitions seeking, once again, "Black Box Warnings and Dear Doctor Letters."

Recently Bayer issued a "Dear Doctor" letter in Europe regarding the severe adrs to Avelox. But we find no such letters being written here in the United States.

Anyhow, just a brief note to let you know that you are not alone, your name is "Legions", and we have been fighting on your behalf since 1999.

Regards,

Mr. David T. Fuller
Director
Fluoroquinolone Toxicity Research Foundation
www.fqresearch.org

For all of you suffering on this board I strongly suggest you log unto www.fqresearch.org where you will find over 4000 medical journal entries, case reports, etc., that detail the horrendous damage these drugs are capable of. You will also find a link there for a support forum hosted by yahoo that everyone here is invited to join.

We have been fighting with the FDA since 1999 to get "Black Box" warnings as well as "Dear Doctor" letters sent. Had this been done I doubt that most of you would be suffering like this. This class is a drug of LAST RESORT, and it is not approved as a first line agent for ANY disease state.

It is both shocking and appalling that we see people coming on this site promoting the use of these drugs and chasing you for suffering a reaction. I can assure you this is not "in your head" by any means. These severe adverse reactions have been documented since 1982 within ALL of the leading medical journals. They are THE most toxic and dangerous antibiotic in clinical use today.

But the FDA refuses to provide adequate warnings within the package inserts and Public Citizen has had to SUE them in Federal Court to even have them review their petitions seeking, once again, "Black Box Warnings and Dear Doctor Letters."

Recently Bayer issued a "Dear Doctor" letter in Europe regarding the severe adrs to Avelox. But we find no such letters being written here in the United States.

Anyhow, just a brief note to let you know that you are no alone, your name is "Legions", and we have been fighting on your behalf since 1999.

Regards,

Mr. David T. Fuller
Director
Fluoroquinolone Toxicity Research Foundation
www.fqresearch.org

For all of you suffering on this board I strongly suggest you log unto www.fqresearch.org where you will find over 4000 medical journal entries, case reports, etc., that detail the horrendous damage these drugs are capable of. You will also find a link there for a support forum hosted by yahoo that everyone here is invited to join.

We have been fighting with the FDA since 1999 to get "Black Box" warnings as well as "Dear Doctor" letters sent. Had this been done I doubt that most of you would be suffering like this. This class is a drug of LAST RESORT, and it is not approved as a first line agent for ANY disease state.

It is both shocking and appalling that we see people coming on this site promoting the use of these drugs and chasing you for suffering a reaction. I can assure you this is not "in your head" by any means. These severe adverse reactions have been documented since 1982 within ALL of the leading medical journals. They are THE most toxic and dangerous antibiotic in clinical use today.

But the FDA refuses to provide adequate warnings within the package inserts and Public Citizen has had to SUE them in Federal Court to even have them review their petitions seeking, once again, "Black Box Warnings and Dear Doctor Letters."

Recently Bayer issued a "Dear Doctor" letter in Europe regarding the severe adrs to Avelox. But we find no such letters being written here in the United States.

Anyhow, just a brief note to let you know that you are no alone, your name is "Legions", and we have been fighting on your behalf since 1999.

Regards,

Mr. David T. Fuller
Director
Fluoroquinolone Toxicity Research Foundation
www.fqresearch.org