June 19th
2008
10:04 PM
WOW, I am so happy to find this site. I am a 56 yr old female. I too am on Toprol. I was on 75 mg 2 x's a day for HPB and mitral valve prolapse pain. Then yesterday the Dr. increased my dose to 100 mg 2x's a day .Today my ankles and feet blew up like balloons. I have been having profuse sweating and was cold and clammy for the past year and no Dr could tell me why!! NO sex drive , depression,sleep apnea, severe insomnia, brain fog, short term memory issues, moody, irritable, my husband has threatened to leave me. NO appetite!! Floaters in my eyes started a few months ago, I have so many symptoms that I have read in all your posts. No quality of life for the past year. I have felt like I was losing my mind, gained 35 lbs in past 2 years without changing my eating habits. I gained the weight after I had lost 50 lbs. Been on Toprol about 2 1/2 years ( I think ) Every symptom I have experienced I have read in your posts!! I have type 2 diabetes and am on glucophage, I also take 10 other scripts. I have fibromyalgia and chronic fatigue, RSD in my left arm, muscle pain and joint pain. Pain in my right upper qaudrant. Nausea/ some vomiting, NO ENERGY, Loss of interest in most of life. So now after reading all your posts I have to ask myself, are all my symptoms linked to the Toprol and not syndromes or illnesses? I am calling my doctor in the morning and getting off this med!! They will just have to put me on something else!!!
So how do I post to receive replies?
Joyce47oh
June 8th
2008
1:21 AM
I have been on lyrica for over a year for the treatment of RSD (Reflex Sympathetic Dystrophy). The biggest side effect that I have had has been weight gain. I have gained approx. 55lbs since I was first diagnosed 3 years ago-- At least 30 of those have been in the last year from the lyrica. No matter how healthy I eat, or how much physical therapy I do I still can not seem to shed the pounds
-- By rsdsux | Reply | (3) replies | Private Message me
September 24th
2007
1:45 PM
I was prescribed 25 MCG tabs of levothyroxine (generic for Levoxyl) by my MD for my hypothyroid. (I was tested at a 4.5 reading -- just below a normal 5 reading). After 60 days of taking levothyroxine EXACTLY as prescribed (i.e.; on an empty stomach, 1st thing in the morning with a glass of water; no vitamins for at least 4 hrs afterward), I started to have symptoms that I've never experienced before: my hands began hurting so bad with joint pain; my lips felt numb; and I was sweating more than I ever had in my life. I decided to stop taking the medication due to these symptoms, and in about 7-10 days from stopping, ALL these symptoms had disappeared and have not returned to date. I relayed this information to my MD who told me that my symptoms had nothing to do with Levothyroxine and that I needed to continue taking the drug. It's more than strange to me how some MDs will not listen to his/her patient -- even more so now that I've read other info on the internet where many other people have had these same side effects taking levothyroxine!! On my own, I am now looking into taking an all natural alternative that I found on wellness resources called "Thyroid helper". I will not take Levothyroxine again if I can avoid it by taking an alternative. Has anyone else out there had success taking "Thyroid Helper"?
-- By maggb1 | Reply | (9) replies | Private Message me
September 7th
2007
4:31 AM
I have been on Topamax since June 2007 when RSD was diagnosed after 3 tests that were performed Bone Scan, EMG & VNC after knee surgery. 2 of the 3 tests came back positive) My doseage has been gradually increased to 100mg. Most of the side effects described above I've had, the only one I am experiencing, that I did not see posted here, I have broken out in hives. My skin started off very itchy and then all of a sudden I broke out in hives, and the hives have only appeared on the side of where the RSD was located. I have found that this medication has worked, but the side effects are quite difficult to deal with at times. I find that when the medication is increased it takes 7-10 days for your system to adjust.
I don't know about anyone else, but it took me quite a while to type this email also, it take a while to focus, and to get your thoughts together.
This is to IMISSMYWIFE, I don't know if this is my husband or not, but it sure sounds like it could be, I'm sorry for all the pain I've caused you and Nicole.
-- By theanny61 | Reply | Private Message me
July 24th
2004
2:51 PM
My Daughter is on morphine sulfate. she is 18 and has has RSD for 4 years. She has been on the morphine for 3 months now, but is losing her hair. Dose anyone know if this is a side affect? She is really getting upset over the loss of her hair.
-- By ksgates | Reply | Private Message me
Topamax (1) Toprol-XL (1) Levoxyl (1) Morphine Sulfate SR (1) Lyrica (1) Methadose (1)
October 20th
2008
1:26 PM
About 6 years ago started methadone for RSD 90mg a day with some relief
-- By dystrophy | Reply | Private Message mebut was aware of no libido,sweats (thought from RSD), weight gain, lethargy and
speech- thought confusion, dropped to 40mg a day with great difficulty but pain remained pretty much the same, back up to 60mg daily but lethargy,tremors,no libido-- very low testosterone,anxiety over uselessness but methadone is cheap but now is ineffective. Added Ritalin for alertness but when it wears off I must sleep. Also don't like feeling of perhaps requiring uppers.very depressed (over statement) but I take 450mg of Wellbutrin.No end in sight, am 64 and married, wife understands but she is burdened and sad. Evidently no other solution. RSD resulted from coleus fracture 1/02/2001,right hand useless.