Peolpe symptoms and conditions

PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.

Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.

Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.

So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).

We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.

I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.

I RECENTLY HAD BACK SURGERY AND HAD BEEN GIVEN SULFAMETH/TRIME 800/160 FOR INFECTION. MY SIDE EFFECTS ARE SWEATS,CHILLS MOOD SWING AND I CAN'T SLEEP. BUT IF DO I ALWAY'S HAVE NIGHTMARES... THIS IS A HUSTLE DRUG!! WHAT I MEAN BY THAT IS YOUR DOCTOR'S GIVES YOU THIS POISON AND YOU HAVE ALL OF THESE CRAZY SIDES EFFECTS,WHAT IS THE FIRST THING YOU DO? GO BACK TO SEE HIM.. AND WHAT DOES HE DO? RUN SOME TEST AND SEND YOU TO A COUPLE OF HIS FREINDS OR SAY YOU GO TO THE HOSPITAL 9X OUT OF 10 YOU GONNA BE ADMITED AND THIS DOES WHAT? COSTS YOU ALOT OF MONEY .. THIS SHOULD BE TAKEN OF THE MARKET... AND FOR THE PEOPLE WONDERING IF MEDICATION IS THE ONLY WAY TO GET WELL IT'S NOT READ UP ON HERBAL AND VITAMIN SUPPS GO TO THE VITAMINSHOPE AND GET A BOOK ON IT AND EDUCATE YOUR SELF ABOUT YOUR IMMUNE SYSTEM I BET YOU'LL CHANGE YOUR WAY OF EATING ... TAKE CARE PEOLPE

Penny.... Hang in there because I do not think it has to do with Fibromyalgia. Keep reading....

This is a follow up to what I posted on 2/9/06. I went to see my internist today. He is not the doctor that prescribed the Levaquin. The doctor that prescribed the Levaquin suggested that I see my internist because he didn't know why I was having the joint pain. The internist asked me a bunch of questions and then asked if I was prescribed any mediactions lately. That's when I told him Levaquin. He said that is what is causing the joint pain. He told me that it is a reaction that can come on after stopping the drug. He said that it can affect any or all of the joints. In my case it's my shoulders, elbows, wrists and fingers. He told me that a lot of peolpe suffer the most in their knees and ankles. He said that not only does it cause joint pain, but it also causes tendon pain. He said that a reaction can happen with any dosage. It has been 16 days since I took that Levaquin. The pain is getting better. The internist told me that maybe another week or two before my joint pain is completely gone. He told me never to take Levaquin again and he told me to never take Cipro. He was very supportive and I didn't even have to bring up the subject of Levaquin side effects to him. The minute the word Levaquin left my mouth he knew. If I experienced this pain after taking just one dose I hate to think what would have happened to me if I took the entire prescription.

To all who are going "crazy" trying to figure out if the Levaquin is causing the joint pain........ It most likely is. This is a very dangerous drug and my heart goes out to everyone that is suffering from the horrible side effects.

I am 50 years old and was put on Topral 2 weeks ago for HBP and PVC's. I had
been on a diuretic and Potassium supplement because of slight high blood
pressure for 9 months, and that's when the PVC;s got bad. 4 days after
starting the 50MG of Toprol and stopping the diuretic, my calves started to
swell up and get puffy with edema. I weighed myself and saw that I had gained 8
pounds in 4 days! I went to the Dr. the next day, assuming he would take me off
the Toprol, but he said to stay on it, because it was contolling the PVC's and
that the Edema was caused by my stopping the water pill! So, I went back on the
water pill and weaned myself off slowly for the past 9 days. Now, today, the
edema is back. I am scared that I am going to get Heart Failure because of the
water weight gain, or DVT, I want off the pill! But I can't stand the constant
PVC's and I was near suicidal with that! I don't know what to do? Does anyone
else have this leg swelling? Does it go away? Is it dangerous? My husband
died last year and I need to stay well for my teenage daughter, but this is
ridiculous! I'd rather have had the slight HBP and not taken any of this at
all. if there is anyone out there who cares, please answer me, I'm so scared!
And now that I have read al these posts with the other awful side effects, I'm
twice as scared. I know many peolpe on Beta-blockers, and they have no side
effects. What is wrong with me?

Kathy

I am 50 years old and was put on Topral 2 weeks ago for HBP and PVC's. I had been on a diuretic and Potassium supplement because of slight high blood pressure for 9 months, and that's when the PVC;s got bad. 4 days after starting the 50MG of Toprol and stopping the diuretic, my calves started to swell up and get puffy with edema. I weighed myself and saw that I had gained 8 pounds in 4 days! I went to the Dr. the next day, assuming he would take me off the Toprol, but he said to stay on it, because it was contolling the PVC's and that the Edema was caused by my stopping the water pill! So, I went back on the water pill and weaned myself off slowly for the past 9 days. Now, today, the edema is back. I am scared that I am going to get Heart Failure because of the water weight gain, or DVT, I want off the pill! But I can't stand the constant PVC's and I was near suicidal with that! I don't know what to do? Does anyone else have this leg swelling? Does it go away? Is it dangerous? My husband died last year and I need to stay well for my teenage daughter, but this is ridiculous! I'd rather have had the slight HBP and not taken any of this at all. if there is anyone out there who cares, please answer me, I'm so scared! And now that I have read al these posts with the other awful side effects, I'm twice as scared. I know many peolpe on Beta-blockers, and they have no side effects. What is wrong with me?

Kathy