Lyme symptoms and conditions

I was prescribed Doxycycline 1 dose twice a day for 2 weeks because of my lyme disease diagnosis. I am now at the end of the 2 weeks. For the first 9 days I felt pretty good. Lyme Disease symptoms were almost gone and my energy was very high. Now I am in a zoned out haze and I urinate like crazy. Whatever I drink just runs right through me. I feel tired and kind of achy. The craziest thing is the frequent urinating. I suppose I could have a urinary tract infection. This medication is messed up.

I was given Avelox July 2007 .. within a week started getting severe leg pain in both legs .. making walking too difficult and painful... This pain has stayed with me 24/7 since I took the avelox over a year ago.. I have been to over 12 Doctors this past year trying to get help...and spent a small fortune with many tests done..now diagnosed with fibromyagia, osteoarthritis, cardioapathy, torn knee meniscus, adrenal fatigue, and i.b.s. which all developed after given Avelox... Not one will acknowledge that I may be suffering from a severe reaction to Avelox ... though they have no answers and have not been able to help me.. I have tried acupuncture, massage therapy, physical therapy, and steroid injections.. nothing has helped.. I am now seeing a Holistic Dr. and being treated for many hormone vitamin, and mineral deficiencies .. .I It has been a nightmare year with this 24/7 pain.. homebound.. because too painful to walk..and I also have constant gastric discomfort and insomnia. I feel my body has suffered from a very toxic reaction to the Avelox and just want to warn others out there too.... Please think twice before taking any antibiotics from the quinolone family...There are less toxic antibiotics that can be given.. not worth taking the risk of suffering serious reactions from these very poisonous antibiotics..

I started this antibiotic because of symptoms my ER physician thought paralleled those of lyme disease... At first I had mild to severe nausea... which was assisted with the intake of a meal or snack. Those symptoms I could deal with... that and a wonderful yeast infection that occurred around the fifth day. The side affects that became unruly, were those of confusion, panic, paranoia (I became extremely jealous/thought my partner wanted to leave me/ and felt un-trusting of just about anyone near - people mocking me, wanting to avoid me, unloved me), and had random bouts of crying - which affected my libido tremendously.... one moment I was in the mood.. the next I wanted to be held in a fetal position and cry. I finished the 14 day regiment about three days ago, however I still have some side effects remaining... I still have panicky thoughts.. almost flash backs of past anxieties... as though I am relieving them again... and paranoia... that people are talking about me, or scheming. I can understand these behaviors if they were pertinently normal.. and a justified part of my general existence... however, I am generally a stable, upbeat and cheerful individual with normal reactions to stress... being that the only time I act reasonably irrational is around my period, where I feel fat and uncomfortable. The panic and rage I felt on this medication was coupled with insane thoughts and neurosis.

I do not recommend this to sensitive individuals.... or any one who is prone to medication side effects.... truly an awful experience... glad there is a support group. Still waiting to return back to normal.

I started taking Levaquin on Aug 8th for bronchitis 6 days after taking medication I was awoken about 2am with severe shoulder pains in both shoulders I went to the ER to find out why I told them that I was taken Levaquin they took an X-ray of my shoulders and said they were fine prescribed percocet for pain. Pain got worse went back to ER was given a shot for pain and was told to get an appointment with bone and joint Dr. On the day of appointment my right forearm, wrist and hand swelled up. I told my Bone and Joint Dr.that I was taken Levaquin I told him that I stopped it immediately after reading side effects He prescribed an anti-imflammitory Pain got more severe went back to ER was given EKG and took blood and urine test all test came back fine. Went to another doctor he then checked me for Lyme disease. which came back neg. I then went back to first doctor that prescribed the Levaquin. she thought that I had arthritis. 8 different blood test were given all came back fine. Ended back in ER because by the end of day I could not walk, had high fever, sore throat, severe head ache, and was sick to stomach. Several more blood test were done. all came back fine. ER doctor prescribed prednisone which seem to help some. I went and seen another Dr. Still no one knows what is really wrong. I believe it is the LEVAQUIN it has messed me up bad.

Have been on med for two weeks for confirmed case of Lyme Disease. It being August, I spent a good deal of time in the sun. Even with constant application of 50 spf sunblock, ended up burned. Hands and feet, especially. After that initial (horrible) sunburn went away, have stayed inside. Somehow, yesterday my nose became very red. Ho ho ho. My lips are also burned, strangely, and seemed to have swollen to Angelina Jolie proportions... worried will continue to swell to Bubba Gump size. Will be interesting when I meet my eighth grade students for the first time tomorrow. As for nausea, not so bad. All in all, I'd much rather suffer these symptoms than continue the excruciating joint pain of the Lyme.

I have been taking YAZ for 2 months and just picked my new pack up to start tomorrow but they are going in the trash! I started doing research tonight on YAZ for the first time searching for answers of what could be wrong with me! I have had an MRI checking for MS, blood work checking for Lyme Disease, along with many other tests to try to determine why I am experiencing NUMBNESS is my hands, arms, legs, feet and face, and mostly on the left side. After all the tests have come back negative, I have been left with confusion and sadness wondering what could be wrong. Then I looked at YAZ side effects tonight, and what a realization! I am so sorry for all the women like me that have been going through this. This drug is terrible and should not be on the market. I was just married on July 12th and the happiest time of my life has been covered with the dark cloud called YAZ. No wonder I have felt so sad and so crazy. I started taking YAZ because I wanted to be better for my husband and not make him have to put up with my PMDD. However, I have become someone other than myself, someone who is angry and sad for no reason. Thank goodness I have realized what has been wrong. Now I can get to the marriage I have waited for all my life! Please, if you are taking YAZ, stop, and if you are thinking of starting it, DON"T!

Hello all,
I'm in the same boat but near the end.... I was given Bactrim for a UTI. I woke up after 2 days with horrible aches in my joints and muscles. I was immediately taken off the Bactrim and put on Doxycycline. I was then put on Prednisone for the aches (which helped). I developed blisters and a rash after a few days. My aches went away after about two weeks but now I have itchy, sore and peeling feet, buttocks, mouth, and genitals. Stomach upset as well. I have been tested for everything (STDs, Lyme Disease, West Nile, etc, etc) and everything has come back negative. I was diagnosed with Stevens-Johnson Syndrome from the allergic reaction I had to the Bactrim. It has been 3 weeks since the first dose and I am finally starting to feel better (except for the insane itching). Good luck to everyone. Never again!

I started Adoxa (generic form of Doxy) about 2 weeks ago for a cyst. About 5 days after taking the med, I was swimming and my hands had the weirdest sensation... After I got out of the pool, my feet were on fire as were my hands. Thought I just had gotten sunburn, though I don't normally burn. A couple days later, I had a severe tingling/burning in my fingers and toes. Couldn't sleep because of the pain. This lasted 2 night and I stopped taking the Adoxa. Went to Urgent Care because the burning was not subsiding and and my toes and fingers were EXTREMELY sensitive. I couldn't even open a pop can. Dr. said I had Periphrial Neuropathy and it is not a side effect of the Adoxa that I was taking. Told me I had symptoms to a bigger problem. I have been off Adoxa now for 4 days and the tingling/burning/sensitivity has all gone away! I know that it is the Adoxa and will not ever take it again!!! Remember to trust your instincts when you take medications!!!!

I started Doxycycline Hyclate several days ago (100 mg 2x daily) as part of 3 week regimen to treat Lyme Disease. I have had some stomach upset, a generally reduced appetite, and cottonmouth... but by far and large the biggest effect has been this overwhelming exhaustion.

Went to bad at 9:30 last night and woke up at 9:00 am this morning but could not drag myself outta bed until almost noon. Its now the middle of the afternoon and I feel like a complete zombie. Spacy and unmotivated, my head might as well be made of wood and can't pull it together to even take a shower yet.

I am a real outdoors guy and keep up a busy routine of work and exercise. Another 2 and a half weeks of this is gonna drive me nuts. I guess it is better than having Lyme, but does it get any easier?

I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!

I took this medication as a malarial prevention whilst traveling through India.
Never EVER again. My boyfriend had suffered from depression in the past and we had heard bad things about Larium in relation to anxiety and insomnia so we specifically asked our doctor for the malarial tablets with the least amount of side effects associated with that kind of stuff. He reassured us that there was no record of Doxcycline ever having caused those sorts of effects.
So off we went- we followed the instructions exactly and began our trip.
A week or so into India I began to notice shortness of breath and stomach pain- I put it down to typical India travelers upset and thought no more about it. A bit later I began to suffer moments of anxiety that were really out of character ( I've never suffered from anxiety or depression). I'm very well traveled ( I work in the travel industry and have traveled extensively in the Americas, Africa, Australasia and se Asia) and so although this was my first trip to India- i knew my anxiety had nothing to do with India itself. ( people kept telling me this but I loved India)
It came to a head on a overnight bus from Goa to Hampi- I was feeling really anxious, sweating and clammy, I couldn't sleep and my breathing was really tight. Eventually I had a full blown panic attack that was almost like a out of body experience- I couldn't see and I couldn't breath. The whole bus had to stop ( embarrassing!) at 3am in the morning. Eventually I managed to get back on and make it to the next town ( although not as far as Hampi) so we could take stock.
I was petrified and had no idea whatsoever what was going on. It never occurred to me it could be the malaria tablets as we had been so clear and our doctor so confident they didn't have these kinds of side effects.
I was worried about being on buses, trains even planes again since I didn't know what caused the attacks and I was terrified another one would happen. I had no valium or any other sort of thing that might have helped. In the end we had to cut our trip short and make it back to Mumbai - In Mumbai I suffered from another two panic attacks- one where I could see the walls closing in in our cheap hotel room. Shortness of breath, tightness all through my body, hysteria, blurry vision - it was awful! And also this ongoing pain and upset in my stomach.
I ended up cutting short a RTW trip that my boyfriend and I had been saving for for over a year and coming home to Australia 2 months early.
It was devastating and I still had no idea what was causing it. Finally a friend said her doctor had mentioned sleeplessness and anxiety as a rare side effect of this drug when she was taking it for some problems to do with vaginal bleeding and spotting. I started searching on the internet and was amazed to find loads of sights with people experiencing heaps of the side effects that I'd been told were never a problem with this drug!
Obviously Malaria is really serious but if I had been properly informed I could have made the decision to come off the drugs and look at alternate medication. For now - Im taking the risk of no malaria tablets at all for my next couple of trips (to Borneo- so not a major risk anyway) and will actually research much harder before taking anything again!

Am on my second 3-week course of doxycycline for Lyme disease since the first go round didn't eradicate the infection. Have all the classic side effects mentioned, however the stomach ailments are GREATLY alleviated by taking a strong (70 billion parts per capsule) probiotic. Take it half way between the 2 doxycycline doses and although it isn't magic it does make a difference.
Although I have no appetite, I try to graze lightly on foods that appeal to me throughout the day and that seems to help with many of the horrific side effects.
Also, my MD suggested I take Aleve and NOT Ibuprofen for headaches since the Ibuprofen can cause a "headache" kickback (and causes stomach pain). Don't know if that's true, but the Aleve seems to help a little.
Worst side effects for me are utter exhaustion, dizziness, stomach pain, sore throat, and a head that hurts feels like it is filled with wet cotton. Also heart palpitations which may be part of the Lyme disease.
Hope some of this helps.

On doxycycline now for 3 weeks 100 mg twice per day. I can't stop yawning. I am so tired and it is difficult to concentrate.
Suppose to take the regimen for at least 6 weeks for chronic lyme disease. I skipped last night's dose. Although I am so tired I feel at night like I have a fever and do not sleep more than 6 hours.
-Lizydoo

My wife had Mirena inserted last year around May. Side effects were similar to those detailed here. Non-existent libido. Acne. Consistent with other's reports of joint pain, my wife experienced symptoms that were diagnosed and treated as Lyme disease. At the time we wondered how it could be Lyme disease when the doctor reported that several tests for Lyme disease came back negative. Now we wonder if the joint pain was actually the Mirena.

After reading the comments on this site, we had the Mirena removed in late May, despite a skeptical doctor. A week of uncomfortable heavy period, but not to bad. My wife's libido has returned, her face has cleared up, and I've gotten a vasectomy.

best wishes, Jim in VA

I am 53 years old and was almost 4 years on Lipitor and started experiencing periphial neuropathology that was horrible! I had a keen neurologist who took me off after doing several tests for Lyme, Lupus, MS, etc. She said she sees more and more of my symptoms 3 to 8 years plus on Lipitor. I went off Lipitor on June 1st (my birthday), so have been off for more than a month. All of the zapping and tingling has subsided in my hands, feet, face, arms, and head. I still have neuropathology in my hands, some muscle weakness in my arms, and numbness in my toes which are all slowly diminishing. My neurologist says she expects full recovery in 4-6 months. Take B complex vitamins. I take Shaklee's twice a day.This greatly helps in the repair of the nerve damage from Lipitor. My neurologist also recommended me taking FBCx, ******(1-2 with every meal containing fat, the website explains dosage), and 1 tablespoon of omega 3 fish oils in the form of flax or fish to reduce cholesterol. There are other things I take like garlic, cinnamon extract, green tea extract. If you type in "lower cholesterol with supplements" online you will find other things like red rice yeast as well. Good luck!

I started on 40mg of simvistatin 3 and a half months ago,after being on them for a week i started to get bad headaches and felt really fatigued,so when i told my gp she said its just a matter of your body getting used to them,so i continued taking the pills i seemed ok for a while but 5 weeks ago i started with palpitations,then i got indigestion, and general discomfort in my chest,weakness in my arms and legs, headaches and the fatigue came back worse than ever,i haven't been back to see the doctor,i stopped the pills yesterday,the indigestion has gone already,i want to lose about a stone and try to lower my cholesterol myself ,but how can you exercise when you feel so weak and tired,my cholesterol level is 5 but because i suffer high blood pressure the doc said it needs to be 4.3,does anyone else suffer from the same and is on this medication?

I'm taking Doxycycline 100mg 5x/day. Started a little over 2 weeks ago for Chronic Lyme. I have a 4 month course to complete.
In the past 14 years after that tick got me I was the living dead, those with Chronic Lyme know what I mean. I have virtually the same side effects as everyone else here and wonder if it even matters how much you take a day. A lot of you have the same doses (100mg 2x/day) and the same degree of side effects as I do. My side effects are headaches or a pain in my right temple whenever I cough, severe itching EVERYWHERE, blisters on my hands from itching, burns on my skin wherever the sun shines on me (I live in Florida), vomiting daily some days worse than others, mood swings, crying for nothing, nausea almost constantly, gassy (both ends), I have a bladder infection that started 2 days ago that after reading this can be attributed to the Doxy, asthma symptoms are getting out of hand, I also have this odd swelling/pain over my liver/gall bladder area that's been coming and going, ears ring, noise bothers me and actually starts a headache, diarrhea the first week and constipation the second week, skin feels tight and there's noticeable swelling all over.

With that said I want to say that yes this is not one of the more pleasant drugs to be on however in my case if I don't get these bugs out of me I am going to die so would rather deal with side effects knowing these bugs are being killed and I will be off them someday unlike the Lyme I will have for eternity. Lyme people and other chronically ill people on these meds say this is called "herxing" and this comes and goes also. You feel really bad and then you feel good, then bad and then good again and so on. I started out on this drug keeping in mind that any sikness/side effect was telling me those bugs are dying so in a sense I almost welcome them.

Good luck everyone:)

I feel like I am SO tired on doxycycline. I'm on it for Lyme disease, had Rx for 3 weeks, was off it a week and started to have the joint pain relapse, so now I'm on it for four.
It seemed that I was finding myself with very shallow breathing too. It seems if I forget to take a dose or two, I'm not as tired.
I'm less focused and more forgetful, it's hard to get things done.

The backs of my hands burn and have red blotches...they burn if the sun even touches them (tough to do anything outdoors...michael jackson gloves, or what?)...they also burn when I run water over them. I'm taking 200mg twice daily for chronic lyme...and am toward the end of the second week of a three week protocol. After reading some of these comments and other allergic reactions elsewhere, I've taken my last dose about an hour ago...

(I love the sun, and am afraid I'm turning into some of those people you see with huge wrap around sunglasses and arab clothing...I want the beach, surf and sail...)

Most of the "side effects" are die off responses (sometimes referred to as a herxheimer response similar to that which occurs when treating syphillis) from bartonella or borrelia. Levaquin is a potent intracellular antibiotic...where these and other organisms can hide. These can be subclinical infections where (at this time) you are not even aware you are infected. If your "side effects" start around the 3rd day into your prescription...rejoice...and suffer for a while, you are killing something really bad.

I find some of these posts interesting because it seems as if some folks either do not completely read the dosing instructions that come with all medications when they are picked up from a pharmacy or given by a doctor, or they just choose to ignore them. I have been on Doxy for six months for the treatment of Lyme and Rocky Mountain Spotted Fever. It's been no picnic at times but I feel 100 times better than before I started it. When I started taking Doxy, I too didn't pay much attention to the dosing instructions and I learned the hard way with some uncomfortable side-effects. Here are a few recommendations from someone who has been taking this drug long-term. 1. You must eat! Eat a small snack (banana, crackers, fruit) before you take the drug. Do not take it with something that you know upsets your stomach, also do not take it with dairy or any supplements containing magnesium or iron. 2. After taking the drug, eat another small snack, same as in #1. Avoid any of the supplements or dairy listed above for at least two hours. 3. Imperative!!! Take a good probiotic regularly (30-50 billion cfu). Antibiotics are designed to kill stuff in your body. They do not distinguish between bad and good however. You need the probiotic to replace the good bacteria in your digestive tract, otherwise your body will not digest properly. I was constipated for quite some time before I figured this one out. 4. I saw a few other folks mention this one. Do not lay down immediately following taking the drug. Again, I learned the hard way, I had severe GERD for a time as well. 5. Avoid long-term sun exposure. This was the latest. My skin has always had some natural pigmentation in it for a white guy and I have not burned too easily. On the Doxy though, I found out that I burn extremely fast. I guess I will be under an umbrella at the beach in a few weeks. 6. Don't panic! This drug was made to fight infections/disease. Be prepared for some side-effects, but also don't be afraid to see your doctor if they are just unbearable. All people do not respond to medications in the same manner. What works for you or me might not work for someone else. I hope this information helps someone out there. I know it is incredibly frustrating when you are taking something to cure an illness and more things go wrong.

taking lisinopril -2 yrs. tues. 6/2/08 - started feeling like the flu. by wed. was so sore in places i had never had muscle and joint pain, all i could do is lay...by wed evening was feeling a little better so, ok it's the flu. took med to go to bed and had one of the most miserable nights ever...what i call severe neck and left arm pain. could not raise or put weight on my rt. hip,leg, knee or foot (those were just the worse spots). by the by been i have been having very poor sleep about 4 months. managed thru thurs, by fri i was convinced it was lyme. saw physician...of course all blood was normal. on sat. 6/7 i kept thinking it was the lisinopril because i would start feeling better (not over the pain, just better) in the evenings and then be right back in severe pain by 2 am.

I had to take Doxycycline for 3 weeks last August when a tick bite I had developed the classic "bulls eye"... a sign of Lyme disease. Everything went well for the first 10 days then I started getting kind of nervous and couldn't sleep well at night. I was constantly starving, really ravenous and had to eat constantly otherwise the nausea got worse. I was glad when I was finally able to stop taking the meds, BUT then after 24 hours I became depressed and really fuzzy in my head and disoriented. This lasted for another 2-4 days. I'm feeling much better now, but I have noticed that I'm just a lot more sensitive to other stimulants...coffee, sugar, alcohol, chocolate. I know I have a few other allergies, hay fever, food allergies etc. I was just wondering, does anyone else out there who has had a negative reaction to doxy have any other allergies or intolerances, or asthma? How much sugar, either in the form of sweets or alcohol do you usually consume? Daily, weekly, monthly...none at all? Feedback would be greatly appreciated. I would like to get to the root of this problem.

I was prescribed Zyrtec a few years ago for allergies. I also have MPV and need to take Atenolol, I will need to take Atenolol for the rest of my life. My cardiologist recommended I stop taking Zyrtec because it can give you an irregular heart beat. When I tried to stop it I got very bad withdrawal symptoms, chills,heart racing, insomnia, itchy skin. I thought I was going crazy, so I took one Zyrtec as soon as I took it 15 min later the symptoms stopped. The next night I decided to try and cut the pill in half and only take 5 mg, that was ok for 3 day's then the symptoms returned. I had to take the other half of the Zyrtec and then the symptoms went away.
I can not believe that I have to find a way to wean off Zyrtec. I am very annoyed that they do not list on the label that their could be withdrawal symptoms after taking Zyrtec for a while. I am not giving up I am going to continue and try to wean myself off the Zyrtec, hopefully I won't have a heart attack in my attempt to get off this drug. If anyone has a successful way to wean off Zyrtec please post it. Thanks and I hope this helped someone who was thinking of taking this drug. STAY AWAY FROM IT..

Wow! Seems as if I'm one of many, many folks with Doxycycline issues. Was prescribed it for symptoms arising from a bad tick bite. Now, in my 5th day of a 10-day course, I have the crushing exhaustion, the mild nausea, the sudden hot flashes and sweats (I didn't even get those during an unmedicated menopause), the aches, the muzzy, on-another-planet head symptoms. I'm thinking that the side effects are better than, say, Lyme or Tularemia – but whew! This has been a stark realization that even if you're a "good patient", even if you read everything that's given to you in connection with a drug, you're still not getting even half the story. And doctors in this managed care world certainly aren't going to tell us. Thanks to everyone who has shared info on this site!