Hook symptoms and conditions

Last year, starting July 5th till August 20th, at the age of 15, I am female, I had to take this devil of a drug. For nearly a month, after getting out of a hospital for a massive kidney infection caused by a kidney stone. The month I went through was a total hell; I was up all night, nearly every night, vomiting what I had managed to eat during the day. Cause of this I lost over 50 lbs and became underweight, from being unable to safely eat without vomiting minutes after the consumption of food. It gave me pseudotumor cerebri, and papilloedema which has nearly ruined my eyesight. It has also caused psychological effects with me caused by hallucinations, I cannot sleep without a nightlight, I am very paranoid of mirrors now, it has left me with depression and paranoia. I do not recommend this drug to anyone, as I am afraid it could cause death! I truly would wish this on no one, not even my enemies.

My husband was prescribed 40mg of this drug 2 years back,for his high cholesterol reading. He is an ex-services and has always been extremely fit, he was tired for almost a year, then he began having headaches to the point he had a brain scan, because he thought he had a tumor. He also has had knee and neck joint problems and now the joints of his fingers are giving him pain He now wakes up each morning feels really ill and feels as though hes being strangled, the sensation lasts sometime for hours and he has to lie down. His doctor said it was blood pressure but he keeps a monitor and his pressure has been normal. His doctor said he should continue to take it, but when you read all the symptoms that people are getting while taking this drug it makes you realize they are all just guinea pigs for a large scale trial of the drug

I just discovered this after 3 months of total misery, 7 different doctors, multiple tests, 1 hospitalization, 16 pound weight loss, almost lost my job, etc., etc., etc.. I want to know if this will have permanent effects on my body and heart and will I ever be the same again. I have been back on the brand TOPROL XL for 9 days now. Keep in mind I didn't know what was happening to me, I never thought twice about the switch to generic, it was cheaper and I also had a lot of stress going on in my life at the time.

My pharmacy switched my "Toprol XL 50 mg" to a Generic one called "Metoprolol Succinate ER 50 mg" (manufactured by Sandoz) in December 2007. I have been on some form of Beta Blockers for years due to PVC's, AVNRT, Bigeminy, Trigeminy and Couplets. NOT High Blood Pressure. In my case I get very symptomatic from the arrhythmias: very low blood pressure, chest pain, fatigue, blacking out. I've had EP studies and attempted ablations in the past, but they were unsuccessful. For the last 2 years I had been under control on this med. Within a week of starting the new generic, I was at my eye doctor because my left eye went from 20/20 to 20/60 and was so blurry that I felt like I had suntan lotion or something in it. The new symptoms just kept coming. Since Dec 07, I have been to a Neurologist, Neuro-Ophthalmologist, Endocrinologist, Gastrointerologist, Ear Nose and Throat Doctor, Cardiologist, and many more. The generic form caused my arrhythmias to come back with a vengeance, I got depression, I couldn't sleep, my chest hurt, my BP was like 85/45, I lost 16 pounds and couldn't eat. I was almost passing out, seeing stars, I had bigeminy/trigeminy day and night for days on end, I was crying for nothing, very moody, I was coughing and wheezing, I had tingling in my arms and hands, loud ringing in my ears, I couldn't concentrate let alone think. I had tons of blood work that the doctors said, "just didn't look right". Upper GI test discovered a hiatal hernia, MRI discovered brain lesions, I had a high red blood cell count (but not anemic), my ferritin was high, my blood sugar was high, I was tested for MS, Lupus, thyroid, everything under the sun and was borderline for these diseases! I thought I was going to die, I had never been depressed in my life and this was the worst. I was beginning to think I was a hypochondriac. But, it was all there on paper, all the tests showed something wrong, but they didn't know what.

I googled Toprol brand versus generic and found out that it wasn't just me, thousands of people have had these same reactions since they started making Generic Toprol. Please read up on it, everyone who writes their story can't be wrong (there is at least one from every state complaining of the same thing). I've been taking the old TOPROL XL BRAND for the last 9 days and my arrhythmias have completely stopped, I have an appetite again and the depression has lifted. I hope it didn't cause any permanent damage.

I know this is probably happening to people everywhere who don't have access to the internet or maybe don't get out much. If you ask the pharmacist, they will tell you that they are exactly the same and they are NOT. The generic may work perfectly for you, but it doesn't work for all. In trying to figure out why I was so symptomatic, the doctors in the hospital took me off the beta blocker completely....I could have had a stroke or heart attack. I started back up on the brand name when after I googled it and realized that you can't just "go off" Toprol. I just wish I would have discovered it about 3 months ago. They thought for sure I had either MS or Lupus and were trying to rule out all the mimics of these very serious diseases. I'm going back to my doctors and have them repeat all the blood tests, etc. to make sure everything is back to normal.

I'm trying to get the word out.

Ultracet works for the pain but the tingly-fuzzy-sleeplessness, hallucinations, floating feelings were so weird, my son asked me (jokingly of course) to "hook him up". One instead of two, works okay for pain and the side effects are much less disturbing. Still, I take them sparingly. I described the effects to my doctor as "an unpleasant high".

In response to guest #12706 - I too had a MRI for the same thing after taking Lupron. They didn't find anything and the symptoms went away after I went off of it. Although I'm not a doctor, my guess is that it's Lupron that's giving you the very common side effects you mentioned. The only thing I might bring up to your doctor is that you have more weakness/tingling on the right side. Although it's rare and I certainly don't want to cause you any additional stress, Lupron has been known to cause blood clots and on rare occasion mini-strokes. I wish you the best of luck and great health! Don't let your doctor off the hook - make sure he/she knows what you are going through.